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Beyond ED, total loss of desire

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    Beyond ED, total loss of desire

    The MS diagnosis finally let me understand why I had ED since I was 29 with no health issues. But it's worse now.

    I'm practically asexual now, and at 36 this is not something I wish to be.

    Anyway else having a problem with a severe loss of desire/libido? Anything that can be done? Talked to my doctor, checked my testosterone and its fine. Other than that he doesn't seem to have any suggestions.

    This was a problem before my diagnosis and MS treatment drugs. Other than MS I'm healthy, (good cholesterol, good blood pressure, good weight, not diabetic, active, not depressed.)

    Any suggestions? What's the point of a Cialis prescription if you're not interested? I'm not married, so it's not lack of interest in my wife. No one seems to turn me on.

    #2
    MS Pilot
    Sorry you are going through this. I know you said you are not depressed, but are you on any anti-depressants to treat anything else? Sometimes those medications can cause a decrease in libido and interest. Also, it concerns me that you don't have any interest in it. That in its self is often indicative of depression. You may be depressed and not even realize it. It may be worth talking to a counselor about it. Just a thought. Hope it helps.

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      #3
      Thanks jsoxfan. At this point I would be willing to pursue any avenue except that one. As an airline pilot I am not allowed to be diagnosed with depression or take anti-depressants.

      Besides it seems counter-productive. Don't all anti-depressants reduce libido?

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        #4
        Been all around the "men with MS" issues but never have lost desire. But I've been married, so to the extent function was impared there was motivation to keep fighting it, mentally at least. Perhaps the uncertainty about performance is causing you to subconciously avoid getting close to the issue by supressing your desire. Of course there are plenty of possible reasons.

        I would talk to a professional and I wouldn't count on a medical doctor to be likely to help, its often not a subject they feel qualified or comfortable talking about.

        Mainly you just have to fight like hell, MS wants you to give up. Don't
        Steve
        sometimes you can't make it on your own

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          #5
          Oleptera aka Trazodone and Ampyra

          Oleptera (check spelling,may be Oletera or similar) is a time release version of Trazodone an older anti-depressant.

          My neuro Rx'd it for me, and my wife's APRN Rx'd it for her because it is not only an anti-depressant, but because it doesn't affect libido and helps one fall asleep. With a little luck my wife might be interested again. The side effect that stopped me from continuing generic Trazadone was an erection that lasted and lasted, very painful when one's wife is on Paxil and Welbutrin.

          I do OK as far as libido goes with Effexor 150, perhaps too much for my wife these days. There's also Effexor 75. My PCP thinks E is the best of the SSRI meds, having taken me off Celexa some years back. He says E increases adrenaline production, he is pretty sharp.

          I have been taking Ampyra for 90+ days, I'm reasonably certain that not only has it helped me walk better, get stronger, but also raised my spirits to the point that I'm very happy. I'm loosing weight according to several people who know me well. Neither my exercise regimen - 20 to 25 minutes 3 days a week on a recumbent bicycle, nor what I eat has changed, I eat less and goto bed a bit hungry.

          Since the last month or two I'm noticing women more, and I was never a slouch. I'm 61, was pleased last night while parked and obviously checked out by a much younger woman walking by - she didn't run in the opposite direction. Then my wife arrived at my car The rules are I can look if I don't leer, I can talk, I can be friends, but not friends with benefits.

          My wife has been known to point out good looking women to me, was very talkative last year when we were on the beach in Puerto Rico. She follows the same rules, but has very poor eyesight.

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            #6
            i'm pretty much in 'ms pilots' camp also the past year .. i don't know if its due to my struggles with erections over the years that has taken the toll on my desire - but it is lacking

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              #7
              Me too.

              I have been unable to function and been losing desire too for years. I am married to a wonderful woman and had to fight to convince her it wasn't her.

              This was before dx. Went to the Dr. and he monitored my testosterone. It was bobbing up and down from midline to the low side. We tried injections of testosterone, patches etc.

              I had to stop the injections as they drove me so high I wanted to breed with anything. We never could get it modulated. I was either a stud or a wimp. I know its every man's dream but it was so stressful I was a wreck.

              Eventually my own testosterone died out. Now that I have been dx's we understand what was going on and my wife and I accept it.

              We are just enjoying each other's company and traveling. I know that sounds dumb but there are so many other things in life. I didn't believe the Dr. but he was right. J.

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