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Diagnosed August 10, 2010

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    Diagnosed August 10, 2010

    I've been on here since March and it's nice to see how everyone comes together and is so helpful.

    In December of last year, I woke up on a Saturday morning and felt as if I'd been drinking....but I hadn't. I was bumping into walls and tripping over things that weren't there. Passing it off as maybe not enough sleep (don't like going to doctors), I just dealt with it. By the next day, I was seeing double and feeling sick if standing or sitting up for more than ten minutes. By the third day, my girlfriend was adamant that I see my doctor. Two visits in three days later, he diagnosed me with BPPV (Benign Paroxysmal Positional Vertigo). He sent me for an MRI just to be safe. Within a month, I'd had my MRI and he had called for me to come discuss the results. When I heard the words "possible MS" and "lesions", I freaked. It was shortly after that I joined this forum and started reading what I could on MS. The doctor referred me to a neuro and I did some more tests with her.

    At the time, she told me that she wasn't giving me a diagnosis, but wanted to keep a close eye on me. Fast forward three months later to July and a second set of MRI's (this time of brain and spine). The next visit was August 10....last week. After comparing MRI's and a long drawn out talk, she told me that "by Alberta's standards" I have MS. For the remainder of last week, I think I blocked it out (didn't have time to think with my work). Over the weekend, I think it started to sink in and now I am dealing with the "What's going to happen now?" I worry about my job, my family, lifestyle....everything. I am just going to try and stay positive and learn as much as I can.

    Any suggestions on reading material?

    Sorry for the long winded post!

    **Post edited by Moderator to break into paragraphs for easier reading! Many people with MS have visual difficulties that prevent them from reading large blocks of print.**

    #2
    Hello Limbo72

    Welcome to MS World!

    You're right - it is nice to see how everyone comes together and are so helpful

    I am just going to try and stay positive and learn as much as I can.
    Good idea!

    As for reading material, I would recommend the various Forums here at MS World, and also you can find much information at the National MS Society site. They have on- line brochures you can read on many topics:

    http://www.nationalmssociety.org/index.aspx

    Maybe other members will respond with ideas for reading material.

    Glad you joined us. Any questions, just ask and we'll do our best to help you out. Looking forward to seeing you around.

    Take care,
    KoKo
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #3
      Welcome!
      Koko's suggestion of the NMSS site is excellent. They'll give you the best info on MS, services available to you and enable you to find your local chapter where you could look into things like support groups, MS yoga classes,etc.

      I'd like to add a couple more :

      http://www.mssociety.org.uk/index.html
      http://www.msif.org/language_choice.html

      The first link there is for the UK MS Society, the second for the MS International Federation. You won't find additional MS info per se, but since one is UK based and one links to a number of countries, you'll see research being done across the globe. Plus, it might be just me, but they (UK) seem to put a smidge bit more info,tips and tricks for day to day living with MS than other society sites do.

      http://www.msaa.com/
      The MS Association of America,not my favorite for MS info, but they have some good programs offering things like cooling vests and grab rails for those that qualify.

      http://www.msawareness.org/
      That one is really only for their exercise videos, made by PwMS for PwMS. A great way to help maintain balance, flexibility and strength.

      If you're a book person there's MS for Dummies, Exercises for Multiple Sclerosis by Brad Hamler and The First Year: Multiple Sclerosis, an Essential Guide by Margaret Blackstone.For a lighter, more personal read : Coffee in the Cereal: The First Year with Multiple Sclerosis by Lorna Moorhead and Awkward B*tch by Marlo Donato (book title is spelled correctly, no "*"). You can find all of those books on Amazon.com. and if you link through from the Amazon shopping link here on MSWorld (see this thread: http://www.msworld.org/forum/showthread.php?t=94185) you'll help support MSWorld,too!

      Hope that helps!

      Comment

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