Hello-
I was confirmed with MS on April 1st 2010, some April Fool's huh. As I read up on MS and look back over the years, I probably have been having symptoms for at least five years.
I am 36 and I do not have children. Now I am not so sure having children is such a good idea, for me. See, I have a live in boyfriend who is barely survivin day to day at this time. He needs two new hips, replacing one artifical which has come loose, and one real one that is locking up. He has Ankylosing Spondylitis and is trying to get on SS. He has been denied a few times so we had to get him a lawyer. He can't hardly move, yet he tries to help by doing few household chores, even if one task takes him all day. And he tries to take care of me. He gives me foot rubs almost daily, and it sure does make me feel better.
Because I am the only one earning income I work 48-50 hrs a week. I also have a two hour round trip commute to work. Before learning of my MS I decided to go back to school. So after work I come home and go online to school. At the end of the week I am completely exhausted. Actually about two every afternoon, I struggle to make it through the rest of the day. I just want to crawl under my desk and sleep, or just sit. After two everything is double the effort to get things done.
When the weekend gets here I am completely exhausted, but I have to finish schoolwork/tests, do household chores, run errands. When all I want to do is sleep. I have started trying to listen to my body and take naps, at least on Saturday. It has helped.
Two years ago I moved to where I am to be with my boyfriend. This put me 100 miles from my family and friends. The support system I could really use right now. Before I lived next door to my parents and lots of family lived along the same street, or not far away.
This site has really helped me. I am learning a great deal about what I have, and what works for other people. While some things might not work for me, it can help give me ideas. This lets me know what I am going through, I am not alone.
I like to thank everyone who posts and the ones that keep this site going.
I was confirmed with MS on April 1st 2010, some April Fool's huh. As I read up on MS and look back over the years, I probably have been having symptoms for at least five years.
I am 36 and I do not have children. Now I am not so sure having children is such a good idea, for me. See, I have a live in boyfriend who is barely survivin day to day at this time. He needs two new hips, replacing one artifical which has come loose, and one real one that is locking up. He has Ankylosing Spondylitis and is trying to get on SS. He has been denied a few times so we had to get him a lawyer. He can't hardly move, yet he tries to help by doing few household chores, even if one task takes him all day. And he tries to take care of me. He gives me foot rubs almost daily, and it sure does make me feel better.
Because I am the only one earning income I work 48-50 hrs a week. I also have a two hour round trip commute to work. Before learning of my MS I decided to go back to school. So after work I come home and go online to school. At the end of the week I am completely exhausted. Actually about two every afternoon, I struggle to make it through the rest of the day. I just want to crawl under my desk and sleep, or just sit. After two everything is double the effort to get things done.
When the weekend gets here I am completely exhausted, but I have to finish schoolwork/tests, do household chores, run errands. When all I want to do is sleep. I have started trying to listen to my body and take naps, at least on Saturday. It has helped.
Two years ago I moved to where I am to be with my boyfriend. This put me 100 miles from my family and friends. The support system I could really use right now. Before I lived next door to my parents and lots of family lived along the same street, or not far away.
This site has really helped me. I am learning a great deal about what I have, and what works for other people. While some things might not work for me, it can help give me ideas. This lets me know what I am going through, I am not alone.
I like to thank everyone who posts and the ones that keep this site going.
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