Hi folks, I've been lurking for a couple of weeks, and sure do appreciate the information here on this site. I finally decided to introduce myself.
I'm Golightlygirl, I'm nearly 47, diagnosed around 9 weeks ago. by MRI and LP. I've had SX for many years, though I had learned to ignore them, as I had suffered from migraines since childhood, and a case of Viral Meningitis in my twenties was the blame for what they decided was Fibromyalgia. Honestly, the biggest problem I had for more than fifteen years was traumatic migrains headaches that lasted more than three or four weeks and a recent (within the last five year) diagnosis of Inflamatory Bowel Disease.
I was learing to live with those problems just fine, until this spring my hands quit working correctly, I developed a funky tremor I couldn't explain, and I started blanking out and losing time. The scariest incident happened in the car. I was sent by my therapist to a neurophyciatrist and given a number of tests. Due to my cognitive impairment, I flunked. Shortly after, I was sent to a Neuro who ordered a MRI w and w/o contrast along with the angio. My brain showed a plethora of old lesions in the MRI without contrast and a very large new lesion in the MRI w/ contrast. I had the LP two days later and it was confirmed that indeed I do have MS. It all happened very quickly.
I am on Copaxone now, no problems there. Shared solutions is fantastic. At my last appointment last Friday, the doctor noticed my legs are much weaker and I'm less coordinated than I was thirty days ago. He asked if I minded an aggressive approach? I said lets go! So, Ampyra is what he wanted for me, however, I am very small in weight. Okay. I am underweight. So I am doing the 4-AP from the compounding pharmacy and working my way up. I don't want to get too far ahead of myself, but I think I feel a touch stronger in my legs and I feel less terrified on the stairs. I'm looking forward to increasing my dose.
I feel blessed. I can't let this keep me from living my life so I'll just live my life around it in a different way. Looking forward to getting to know you better. Thanks for your time.
I'm Golightlygirl, I'm nearly 47, diagnosed around 9 weeks ago. by MRI and LP. I've had SX for many years, though I had learned to ignore them, as I had suffered from migraines since childhood, and a case of Viral Meningitis in my twenties was the blame for what they decided was Fibromyalgia. Honestly, the biggest problem I had for more than fifteen years was traumatic migrains headaches that lasted more than three or four weeks and a recent (within the last five year) diagnosis of Inflamatory Bowel Disease.
I was learing to live with those problems just fine, until this spring my hands quit working correctly, I developed a funky tremor I couldn't explain, and I started blanking out and losing time. The scariest incident happened in the car. I was sent by my therapist to a neurophyciatrist and given a number of tests. Due to my cognitive impairment, I flunked. Shortly after, I was sent to a Neuro who ordered a MRI w and w/o contrast along with the angio. My brain showed a plethora of old lesions in the MRI without contrast and a very large new lesion in the MRI w/ contrast. I had the LP two days later and it was confirmed that indeed I do have MS. It all happened very quickly.
I am on Copaxone now, no problems there. Shared solutions is fantastic. At my last appointment last Friday, the doctor noticed my legs are much weaker and I'm less coordinated than I was thirty days ago. He asked if I minded an aggressive approach? I said lets go! So, Ampyra is what he wanted for me, however, I am very small in weight. Okay. I am underweight. So I am doing the 4-AP from the compounding pharmacy and working my way up. I don't want to get too far ahead of myself, but I think I feel a touch stronger in my legs and I feel less terrified on the stairs. I'm looking forward to increasing my dose.
I feel blessed. I can't let this keep me from living my life so I'll just live my life around it in a different way. Looking forward to getting to know you better. Thanks for your time.
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