My husband is in the group of you that are "probable" MS. His symptoms started in May of this year-- went to a neurologist, suggested an MRI which showed three lesions, two in the brain, one in the spine. Ordered a spinal tap, which we still haven't gotten the results of the oligoclonal bands yet. We switched neurologists already. The new one agreed with the first that its probably MS. He also wants to start on the medicines-- he gave us information on all 5 treatments. He actually is recommending Tysabri, but told us to read the info and come back with questions and concerns.
His symptoms started with a sensitivity to temperature down his left side-- arm, chest, trunk, leg. He still has this symptom-- hot flashes on that side. He also developed a numbness in his left leg from the knee down about a week and a half later-- for about a week or two he had no muscle control of that area. Also had the same sensation in his right foot and hand. That has gone away except for the soles of his feet. Now he has the heavy feeling in his right arm and leg. He's in the middle of an oral predisone regimen.
Its all pretty scary. That first week or two after the results of the MRI were awful-- he started solumedrol the weekend after the doc said it was probably MS. He was anxious because of that, plus the scariness of having MS. It was really rough and really scary for both of us. My husband is a pilot, had been unemployed due to relocation of the airplane, and had JUST gotten a new job offer-- and then had to call them because he couldn't start training because the neurological symptoms that came up. We thought at first his career was over, because FAA has strict guidelines on health conditions. Come to find out, he can still get his medical and fly for a living.
Its very difficult to cope with it at first-- you have all sorts of feelings-- anger, confusion, fear, jealously, sadness. But we're getting things into perspective now. We try to live each day at a time and not dwell on the unknown future, because the reality is with or without a medical condition, the future is uncertain.
His symptoms started with a sensitivity to temperature down his left side-- arm, chest, trunk, leg. He still has this symptom-- hot flashes on that side. He also developed a numbness in his left leg from the knee down about a week and a half later-- for about a week or two he had no muscle control of that area. Also had the same sensation in his right foot and hand. That has gone away except for the soles of his feet. Now he has the heavy feeling in his right arm and leg. He's in the middle of an oral predisone regimen.
Its all pretty scary. That first week or two after the results of the MRI were awful-- he started solumedrol the weekend after the doc said it was probably MS. He was anxious because of that, plus the scariness of having MS. It was really rough and really scary for both of us. My husband is a pilot, had been unemployed due to relocation of the airplane, and had JUST gotten a new job offer-- and then had to call them because he couldn't start training because the neurological symptoms that came up. We thought at first his career was over, because FAA has strict guidelines on health conditions. Come to find out, he can still get his medical and fly for a living.
Its very difficult to cope with it at first-- you have all sorts of feelings-- anger, confusion, fear, jealously, sadness. But we're getting things into perspective now. We try to live each day at a time and not dwell on the unknown future, because the reality is with or without a medical condition, the future is uncertain.
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