I am new to this site. I don't generally post or join websites. I have finally caved in and joined here because, I really need to know that I am not the only person in the world going through this. I have been diagnosed fro a year after several miserable years of thinking that I just needed to take better care of myself. I have always subscribed to the "suck it up" philosophy.
I have been married for 20 years and have 5 great children. I view myself as very blessed.
My husband and children are the only ones that I have shared my diagnosis with. My employer has a general awareness that I have a "neurological disorder". I have not told my Mom or any of my siblings. I guess I kept thinking that it was a mistake and I didn't want them to worry. Now it has been so long and I am not sure how to tell them and I don't want them to fuss or worry. I live several 100 miles away from any of them so it is easy to keep quiet.
I also keep it quiet because I don't want to hear "I know so and so with that and this is her situation" or "You don't look sick" or "that sounds like its all in your head".
So I sit here wondering how to balance sounding like a whiner with making people aware of my changing situation.
I have been married for 20 years and have 5 great children. I view myself as very blessed.
My husband and children are the only ones that I have shared my diagnosis with. My employer has a general awareness that I have a "neurological disorder". I have not told my Mom or any of my siblings. I guess I kept thinking that it was a mistake and I didn't want them to worry. Now it has been so long and I am not sure how to tell them and I don't want them to fuss or worry. I live several 100 miles away from any of them so it is easy to keep quiet.
I also keep it quiet because I don't want to hear "I know so and so with that and this is her situation" or "You don't look sick" or "that sounds like its all in your head".
So I sit here wondering how to balance sounding like a whiner with making people aware of my changing situation.
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