I posted this on the general board but it disappeared, so I am trying here.
First of all, I will apologize if this post is whiny and selfish, but I can't be myself with my loved ones, and thought that you all would understand.
I am 49, will be turning 50 in March, and just found out on Friday that my drivers licence is going to be taken away due to my loss of vision from ON. This is a huge, huge blow to me, I swear it was more upsetting than when I was diagnosed with MS 2 1/2 years ago! The fact that I have been unable to work, and am now in the process of applying for CPP Disability (Canada) was bad enough, but this has been crushing.
As I said, I found out on Friday, and of course told my family when they came home from work, and everyone had a good cry. I have spent the weekend very teary eyed at points, but really I thought that I was coping pretty well. Last night my Hubby told me that I had better get a grip on things, cause it's upsetting the whole family. WTF? Of course it's upsetting everyone....it's upsetting for lords sake. He further went on to say that my 'trying' to do things around the house ect. is frustrating him. I told him that I had to keep doing as much as I can, for as long as I can, and couldn't he see that? I also explained that I am grieving yet another loss of indepence with this disease, and that I was pretty sure that I should be allowed more than 48 hours.
I also said that I understood it if he couldn't handle the things that MS is throwing at us, and that I would leave if he thought it would be best, but that I really can't deal with propping him and the rest of the family up right now. He has finally agreed to go to counselling...but I am 99 percent certain that when push comes to shove he won't go, as we have been struggling with our marriage for the past few years.
Any thoughts on this? Am I being too whiny? Just for the record, I'm 49, a professional who worked until a heart attack and surgery three years ago, then found out that most of my troubles are from MS. On Avonex now, and a ton of other meds, supposedly RR, although I don't seem to be remitting and expect that to change soon. I have one daughter 22 at home, a son 28, who has blessed me with a beautiful grandson who is 11 1/2 months.
Thanks for listening everyone, I read, but don't post very often,
Trudy
First of all, I will apologize if this post is whiny and selfish, but I can't be myself with my loved ones, and thought that you all would understand.
I am 49, will be turning 50 in March, and just found out on Friday that my drivers licence is going to be taken away due to my loss of vision from ON. This is a huge, huge blow to me, I swear it was more upsetting than when I was diagnosed with MS 2 1/2 years ago! The fact that I have been unable to work, and am now in the process of applying for CPP Disability (Canada) was bad enough, but this has been crushing.
As I said, I found out on Friday, and of course told my family when they came home from work, and everyone had a good cry. I have spent the weekend very teary eyed at points, but really I thought that I was coping pretty well. Last night my Hubby told me that I had better get a grip on things, cause it's upsetting the whole family. WTF? Of course it's upsetting everyone....it's upsetting for lords sake. He further went on to say that my 'trying' to do things around the house ect. is frustrating him. I told him that I had to keep doing as much as I can, for as long as I can, and couldn't he see that? I also explained that I am grieving yet another loss of indepence with this disease, and that I was pretty sure that I should be allowed more than 48 hours.
I also said that I understood it if he couldn't handle the things that MS is throwing at us, and that I would leave if he thought it would be best, but that I really can't deal with propping him and the rest of the family up right now. He has finally agreed to go to counselling...but I am 99 percent certain that when push comes to shove he won't go, as we have been struggling with our marriage for the past few years.
Any thoughts on this? Am I being too whiny? Just for the record, I'm 49, a professional who worked until a heart attack and surgery three years ago, then found out that most of my troubles are from MS. On Avonex now, and a ton of other meds, supposedly RR, although I don't seem to be remitting and expect that to change soon. I have one daughter 22 at home, a son 28, who has blessed me with a beautiful grandson who is 11 1/2 months.
Thanks for listening everyone, I read, but don't post very often,
Trudy
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