This is my first ever post anywhere so please be gentle, lol. Just like the many other limbo'ers, I am waiting for answers. My journey started just over 2 years ago, five months after giving birth to my second child. It started with tingling in both hands.
I was positive it was Carpal tunnel. Nope. To date i have had 3 EMGs- all normal. 5 Lyme tests- including the Western Blot- negative. Lupus, Myathenias(?) Gravis- all negative. All vitamins were normal but Vitamin D was 25 so I take a supplement once a week. My first MRI had 2 lesions lesions frontal lobe. Six months later they were both gone but several others appeared, mostly in the Parietal lobe. It said something to the effect of demyelination caused by Lyme or Multiple Sclerosis. And suggested further testing.
I have so many symptoms I can't write them all. It seems every few weeks i get new ones. Two months ago i had horrible itching and wanted to cut it with a knife. My doctor gave me Prednisone and it stopped it. Last week I lost strength in both arms and couldn't pick up a cup and my doctor gave me Medrol this time. I feel great right now!! I want to hurry and do things before all these symptoms come back again. I would say Fatigue and burning pain in random places are my worst symptoms.
I've seen 4 Neurologist's, two were just plain clowns, and the other two didn't want to continue once my LP came back normal. My Rheumatologist says although I do have Fibromyalgia, she believes my problems lie in the CNS. She mentioned MS. Last month I saw a doctor for Neurapathy and was told I do not have it and that I have all the classic symptoms of MS. I see another Neurologist at the end of July. I just want to feel better. I have two small children that need their mom. Thanks for letting me get this off my chest.
I was positive it was Carpal tunnel. Nope. To date i have had 3 EMGs- all normal. 5 Lyme tests- including the Western Blot- negative. Lupus, Myathenias(?) Gravis- all negative. All vitamins were normal but Vitamin D was 25 so I take a supplement once a week. My first MRI had 2 lesions lesions frontal lobe. Six months later they were both gone but several others appeared, mostly in the Parietal lobe. It said something to the effect of demyelination caused by Lyme or Multiple Sclerosis. And suggested further testing.
I have so many symptoms I can't write them all. It seems every few weeks i get new ones. Two months ago i had horrible itching and wanted to cut it with a knife. My doctor gave me Prednisone and it stopped it. Last week I lost strength in both arms and couldn't pick up a cup and my doctor gave me Medrol this time. I feel great right now!! I want to hurry and do things before all these symptoms come back again. I would say Fatigue and burning pain in random places are my worst symptoms.
I've seen 4 Neurologist's, two were just plain clowns, and the other two didn't want to continue once my LP came back normal. My Rheumatologist says although I do have Fibromyalgia, she believes my problems lie in the CNS. She mentioned MS. Last month I saw a doctor for Neurapathy and was told I do not have it and that I have all the classic symptoms of MS. I see another Neurologist at the end of July. I just want to feel better. I have two small children that need their mom. Thanks for letting me get this off my chest.
Originally posted by Navy
Comment