It's been awhile
Hi all
Living in niagara region of Ontario with SPMS. Enduring a real rough patch.
Stay inspired!
Hi all
Living in niagara region of Ontario with SPMS. Enduring a real rough patch.
Stay inspired!
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Each smile, each laugh, each tear, is a moment lived.
Moments tend to expand when shared. -
Just started Copaxone and MS symptoms worsening!!
Hi folks, I just started on Copaxone a month ago and my MS symptoms are getting much worse!! Is this normal?>
Also-has anyone on Copaxone had a terrible reaction to MSG (Monosodium Glutamate)? It's the stuff that the majority of restaurants and fast food places put on the food to enhance the flavour (ie. McDonalds, Chinese food restaurants and A&W)
I learned that MSG affects the brain activity and wondered if this has a combined effect with my Copaxone?
Thank you all from Thornhill.
SiSiComment
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Hi fellow Canucks
Winnipeg, Manitoba here. What a great find this thread is! Thanks to whoever set it up, thank you! We do have different healthcare issues and a very high incidence of MS. I'm in newly in Limbo-land, but I have confident in my GP. I sure am glad to be getting my CTs and MRIs for free!
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Hi there
Im am rather new to this site, and so far I like it very much....like the idea that you can post, as well, join live chat..
Anyhow I am Gary from Beaumont, Alberta (just a tad south of Edmonton). I was dx with RRMS in Dec 2007 and have been on Copaxone ever since....all in all I am doing pretty good. I still work, enjoy motorcycle riding and things as such. I have a wonderful wife, and 4 kids...the youngest who just this summer turned 18...
I really like to help when I can other people with MS. I find that when a group of people as those who are here in this site get together, it is a great way to share ideas and coping methods....
Looking forward to talking to you all and getting to know you all better...
Have a great day,
GaryComment
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Hey, another Barrie native here, nice to see others from my city on this site!!Well look at you, Mr. Walkway. Go on, lead me to the building.
Diagnosed 09/24/99 RRMS, Copaxone 02/2011Comment
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Hello neighbours!
I'm from Toronto and I'm EXTREMELY new to this - officially diagnosed on Tuesday. I guess I started having symptoms last year a month before my 18th birthday but never really thought anything of it since it wasn't bothering me; it was more of an annoyance.
Kinda surprised at how fast things are going. Woke up on the 31st of January unable to speak and moving like a drunkard Spent 3 hours in the ER, got my CT scan, days later had 2 MRIs, and then diagnosed. Should be starting Avonex as soon as I'm done with these steroids!
Quick question - any of you in the GTA who go to the clinic @ St. Mikes? My neuro says he'll refer me if I want to be on top of all the new treatments and everything. How's the clinic @ St. Mikes treating you? Should I stick with my Doc?
Hope everyone's feeling alright! <3Comment
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HI, it is great to have a Canadian page, especially since I am from Gravenhurst, and we dont have an MS chapter up here, it really helps to feel less isolated. My sweetie Chris, is an awesome support, but it is wonderful to connect with others.
I have remitting/relapsing, diagnosed in January, but started on copaxone in December. I saw somone post about copaxone, which is what i am on, I did remember reading somewhere, that it does take some time to get completely into your system.Comment
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In Toronto looking for a decent neuro
My Neuro is not the best in the world, infact I am not confident about him, anyone know of someone decent that will accept patients?Comment
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Hi,
I was dignosed at age of 19 in 2000 myself. Avonex has been decent, go to St Mike's. Even though I never went based on my stupidity and am trying to get refered after 11 years now, that is my suggestion. Also a hint of advice. I was pretty much your age when I was dignosed. I didn't give it as much attention as I should have. Some of it was because I was young, had other priorities and didn't take this as serious as I should have. I am not saying you will do the same but am just trying to give you advice. I have been very fortunate that I have been really good for the past 11 years BUT it is now catching up and my relapses have become faster... keep looking up but do the necessary things along with staying positive..
Hope you are ok and remain ok!
Originally posted by Bahar-G View PostHello neighbours!
I'm from Toronto and I'm EXTREMELY new to this - officially diagnosed on Tuesday. I guess I started having symptoms last year a month before my 18th birthday but never really thought anything of it since it wasn't bothering me; it was more of an annoyance.
Kinda surprised at how fast things are going. Woke up on the 31st of January unable to speak and moving like a drunkard Spent 3 hours in the ER, got my CT scan, days later had 2 MRIs, and then diagnosed. Should be starting Avonex as soon as I'm done with these steroids!
Quick question - any of you in the GTA who go to the clinic @ St. Mikes? My neuro says he'll refer me if I want to be on top of all the new treatments and everything. How's the clinic @ St. Mikes treating you? Should I stick with my Doc?
Hope everyone's feeling alright! <3Comment
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MSG and things such as aspatane or however it spelled is really bad for MS as it is ....just giving you heads up
Originally posted by si-si View PostComment
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So depressed
I haven't been diagnosed yet, after all these years on different anti depressants. I had vertigo young in life and that's when the panic attacks started. I had started dieting and went down to 83 lbs had lost my sight then passed out. Different things had happened, now that I go back in time. I feel lost and alone. A few years ago I went for a facial and she did microbrasion, I couldn't feel it. Right now I can't feel my chest the upper part of my body when I pinch it, I can't feel it. I'm new here so please, I hope I'm not saying things that is against regulations?? I'm in the Midland area, just north of Barrie.Comment
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canadina
Hi i 2 am canadain live i a small town north of barrie called severn bridge.i am in limbo 2have been for over15 yrs now they say i might have spms or ppms about our health ensurance it gets better as you get older over 65 yrs pretty much all med, are paid for.now i have hard to swollow I know what you guys mean going from dr. to dr i am 69yrs old and they just starting to realize somthing is worng.I can hardly walk side of face is numb now my arms go numb.have tremors.hard to swallow ,spasms.I would get theas before but not all at once now thay come more offten and very close to gether.and they tried to tell me also i was to old for ms well hello.We know are bodys if they would just listenany how its a good site this is frist time on it marylouComment
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Hi there,
I'm new to all of this and I am from Burlington, ON.
Had an MRI over a month ago that showed "spots" in the front and back left side. I am going for an MRI with contrast on Tuesday....so, sort of in limbo right now.
My mom was diagnosed with MS about 15 years ago and I have experienced years of symptoms. Sent to this specialist and that specialist and it is so frustrating!! I finally told my doctor that I wanted to start at the top and with the obvious.....MS....and go from there.
Thanks for reading!Comment
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