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    Also in Ottawa

    Originally posted by KeepinCool View Post
    I live in Ottawa, am 52 and diagnosed PPMS in 2004, but I figure it's been around long before that.

    I think we're lucky to have the medical system we have, even if it is lacking at times, compared to our neighbours to the south.
    Hi there,
    I also live in ottawa and was recently diagnosed with ppms. I am 35 years old and quite nervous of what is to become. I am a 3.5 on the scale. What are you and who is your doctor?

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      hello!

      hi there. Just found this thread. Looking forward to chatting/discussing. Newly diagnosed so learning the ropes as I go along.

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        Hi from edmonton, Ab. I am 37 yrs old, diagnosed in 2009, have been taking Rebif for 5 months now (22mcg) so far so good.
        I have an awesome hubby and 2 kids ages 9 and 12.
        I have been cruising the Ms websites for a while not really commiting to one or another but when I found this thread I decided to stop and chat.
        Coffeediva

        "If at first you don't succeed, destroy all evidence that you tried"

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          Hey everyone!!
          I am a Newley diagnosed 24 year old momma of two and I live outside of Edmonton Albert
          Sooo glad I found this thread!! Sometimes it is hard to identify with the friends in the US!!!
          Glad to be here!
          Stay well
          Heather

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            Welcome CoffeeDiva & Heather!

            My husband and I are driving to Edmonton next month to visit family and friends and then on to Barrhead to visit other friends.

            C

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              New Canadian Member

              Hi, I am brand new here and so glad to have found some fellow Canadians. I live in Warburg, Alberta, a village of under 700.

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                Welcome yelishia!

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                  Hello

                  I am from New Brunswick and was diagnosed in June 2009. I am currently having a major flare up but I think the steroids I was on are starting to work I hope I can recover 100% but I realize this may not be possible.

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                    Hi all I am from Toronto and was diagnosed in 2008 (had my first attack in 2007). So glad I found this thread.
                    Dx RRMS 2008/Avonex 02/2012
                    PhD candidate, Epidemiology

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                      Hi everyone,

                      I'm originally from Windsor but have lived in Barrie for the past 6 yrs.

                      Have had symptoms for 10+ yrs.. mri's all clear etc.

                      I am now in a MAJOR flare up pins and needles can't use my left arm.. went to pcp 2 wks ago with just weakness my reflexes were practically non-existent he FINALLY thinks it's MS.. So i'm just waiting on bloodwork , then i see him again on the 23rd.. he wants to send me to St. Mike's as well.

                      He doesn't know that i can't use my left arm or that my symptoms have gotten worse..I will give him a call on Monday.. and see what happens.

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                        I seem to have some of the same problems!

                        Hey there I am new to the forum. I have been struggling with alot of these same problems. Were you diagnosed with MS or are you still fighting with them to find out what it is you are dealing with? I have been dealing with my problems for over 12 years now. I am finally seeing a Neurosurgeon at a chronic pain clinic and I go to see an MS doctor in July. I have had tons of tests to see if I have lesions but so far they are not finding any. But my doctor at the pain clinic said that some people with MS never show lesions. I have problems feeling the stairs.....I have to watch my feet when I go up and down the stairs....in the last 6 months I have fallen up or down the stairs at least twelve times.....Last may I started losing the feeling in my left leg, it slowly got worse to the point of burning across my left butt cheek and numbness, tingling and burning down the left leg. I could not move my toes except my big toe on the left foot....I could not move my ankle up or down. this last for about 9 months then one day I started getting and itching feeling in my leg and could move my toes just slightly.....as it stands right now I have a little movement and my left leg from about the knee down is swelling up. I walk ever day to try to keep mobilty in the legs....but since it started swelling and I can't get a shoe on its hard to even do that... I was wondering if other people are having these same problems.....When I walk my left arm goes numb, the left side of my face and I get a weird tingling feeling on the top of my head....plus the my lips on the left side are always numb......anyway if you or anyone has anything they can help me with for information I would appreciate it......I guess I should have told you all that basically twelve years ago they said I have Fibromyalgia, extreme chronic Fatigue and extreme IBS.......my doctor now is pretty sure its MS but it seems no one is willing to do to much...except pump me full of antisezure drugs and use me a guinea pig.......Help....anyone



                        Originally posted by misshayleesmom View Post
                        Nope,

                        Went for mri and blood work. All neg of course.
                        Doc says its neurological, but won't do anything else.
                        Gave me med for "migraines" said it caused my vision problems.

                        I've never had migraines, just my eye hurts.. then i can't see.

                        Optholmologist says its neurological.

                        I had a reaction to the migraine med.. i feel like a guinea pig..

                        I broke my foot in may, so doc knows about this.

                        He's frustrated.. cause as he says "he doesn't know what more to do for me.. you've had all the tests.. you've seen a specialist.. you've seen a neuro (ARTS) .

                        So right now as i stand he will only do mri's bi-yearly and only yearly if sx get worse.

                        Going down the stairs breaking a foot , i thought would at least put up a red flag since i have trouble feeling the stairs.. i already told him a year ago i can't feel the stairs.

                        I'm just taking it day by day, feeling not too bad lately.
                        I'm getting cast off on Thursday. I can't wait!!

                        Unfortunately, I think the only help i'll get is when something really bad happens like it did for yourself..
                        that's what scares me.. but i have no other choice.

                        You know how hard it is to find a doc around here and even then, if all tests are clear i'm afraid i'll just get the same treatment.

                        If you see Dr. Marchetti at St. Mike's he's very nice but he didn't even look at my MRI while i was there..he only read the report and even then didn't order any additional tests. He called me at home 3 days later about my MRI. So i don't know how confidant i would feel about him..

                        With you having lesions.. hopefully you'll get some answers..

                        Good luck and keep me posted.

                        Cindy

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                          Hello! I'm 28 years old and live in Fort McMurray Alberta. Dx'd a few months ago with RRMS and taking rebif. Hope everyone is is doing good!

                          Cheers,
                          Chad

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                            Hiyall
                            I'm in Toronto, Ontario Canada

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                              Hi Y'all

                              I'm a 28 y/o female student, studying to be a highschool teacher or archaeologist, doing a double degree. I was just surfing the web doing some reading when I stubblemed across this site. Reading some of the stories here made me realize that my father and I are not alone in the fights with the Drs for some dx both of us have been showing symptoms of MS. I recently seen a DR at the university I go to to try to get in to see a nuero, she sent me for a MRI of just my brain and told me I was fine that it was "prefectly" normal; needless to say I didn't take that for an answer and was referred to a neuro after a small arguement with said dr. In my appointment with the neuro she was very upset that I didn't have my spine done at the same time as my brain, she has now sent me for blood works to rule out a combination of 2 other things, but she strongly believes that I have MS and am in the small percentage of people who do not have lesions. I am hoping that with a dx for myself we can get someone to listen to my father as they seem to blame all his symptoms on anything and everything but the lesions on his brain.

                              Although I am happy to have a dr fianlly listen to me, I'm still kind of at a loss, as we have all been fighting for so long to get an answer. I knew that this was a possibility but I honesty didn't except it. I don't know what to tell people when they ask how I'm feeling or how everything went, I don't know what to think or feel at atm. I feel like I have no one to talk to right now as no one seems to see why I am upset about it or thry think that I'm fine.


                              Oh right I guess that I should say that I am from Thunder Bay.

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                                Originally posted by misshayleesmom View Post
                                I agree, i think it's important too..
                                It's not idle chit-chat..it has to do with our health and questions about it.

                                I never know where to post half the time...

                                Thanks for trying anyway.
                                oh my gosh, i have just come to this site. I know it is a little late from when u posted.How are you doing now? I to had gone to St. Mikes, i went in 2002. IT is so frustrating when them themselves don't know how to help or treat us. Hope u r doing well.

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