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    Hi Littlebelle

    Originally posted by littlebelle View Post
    I am sure there are many out there. I have met a few. So Where in Canada are you from? If you do not want to say that is fine. Just pop in and say Hello.
    tony Lake Just outside of Peterborough ON.About 1 .5 hours from Toronto. Have lots of family in Barrie

    I think since our insurance issues and medical supplies issues are different from our US friends we should have a place to discuss how our system works. What trials we have going etc.

    Looking forward to meeting you all

    I live in Barrie Ontario 100 KM from Toronto.

    Comment


      i live in montreal, quebec

      Comment


        Re: Military and Ex and Dependents with MS and everyone else on this wonderful site.

        Hi there Laurakim and Harleychichy and everyone else on the site. I also am not a member of the military but my husband was military for 31 years. I also am a military brat! I never thought my retirement would involve this monster MS either, mine took a long time to diagnose and went from
        RRMS to SPMS but I am still doing fairly well, I walk with a cane now.I had to retire from Nursing 3 years ago.

        No Nurses in Alberta using canes to ambulate yet but with the health care system going the way it is we may see that soon also.LOL. We are trying to do as much as possible to enjoy life and get out and travel a bit while I still have the mobility. It is what it is, We can't change it! I have a wonderful MS Specialist in Calgary at Foothills ,thank God! He actually listens to me and takes the time to explain things about MS to me and my husband. It's wonderful to have this site and not feel so alone.We have to really appreciate the moderators and fellow MS friends in the US that keep this site going. Enjoy your retirement the best you can.I feel things could be a lot worse. It took quite a while for me to accept my diagnosis. I had a poor me pity party for quite awhile, then found out one of my closest girlfriends had rectal cancer and died in 8 months. Her diagnosis and horrible illness sure put things in perpective for me. Bye for now and all the best. I feel a kinship with all the others on MS world so that helps me feel less alone with this disease. Take care, By the way I live in rural Alberta, near Red Deer.
        Noelle

        Comment


          kathrina

          Hi kathrina,
          Must be something about AB doctors, best neuro here than in all my travels.

          2A to Red Deer - on the way to the way to William Watson Lodge (know it? For persons w/disabilities in AB) Hmm, seems we often stop at Black Falds to wait out hail then move onto Red Deer for a bite and a pit stop . I'm always grateful to see Red Deer in the distance.

          I'm an ex-base brat and an ex-military wife, also came to rest in AB.

          See you on the board!
          Laurakim

          Comment


            just starting on this journey

            Hello, I am new to this, I have SLE, which was dx 20 years ago, and a few years ago, I had really bright lights in my eyes, even when my eyes were closed and the room was dark, (nighttime). Then I fell down three steps and broke my leg. I couldn't figure out where the step was, really weird.
            From there, I had balance problems and concentration difficulties. My right eye started to pain, then the tremors! oh boy, vibrating inside at first until it was full body tremors, waking up in the middle of the night like the exorcist, bed shaking and it was me!
            really odd feelings as if my body hair on my legs were twitching and loss of sensation on the sole of my right foot.
            I tried to tell myself, it was all stress related and in my mind, UNTIL I fell three times and couldn't open my hand properly, well I thought I could but it wouldn't do it.
            So the upshot is, mri of my neck which showed nothing, as per the expectation of my docs, now I am having two more MRIs, one of my head and one of my thoracic spine.
            I can't stand being hot, I can hardly move when i get too hot, and am very weak attempting to get out of a bathtub when I used to love having a long soak with nice soaps.
            Double vision and sometimes blurry vision... man I could go on for ever.
            To cut it, they are thinking MS. I find steroids really helps but I don't like the after affects, during my stint with a flare in SLE, solumedrol really worked for me. I have no idea what kind of MS if I have MS, it is... or what meds I will have to take... makes me very nervous, yet another autoimmune disease, does anyone else have other immune disorders? I would love to hear from you. thank you for reading this long winded story, I truly appreciate being able to talk about this without thinking I am off the wall.

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              US

              If you think that its any easier in the US you are sadly mistaken. I've had M.S. for 18 years now and it took numerous testing to finanally come down with a diagnosis. I have many relatives in Canada, Gult, Toronto, Keswick, too many places to mention. I sure wish I were there again on a perminent bases. Its my understanding that Canada will be first before the US to initiate Stem Cell Therapy.

              Comment


                Canadian I am

                I'm from Wallaceburg, DX Sept 2008 SPMS
                NO MEDS just script for bladder control, getting wheelchair next week.

                HI TO ALL

                Comment


                  TORONTO

                  WELL, I'M AN AMERICAN LIVING IN CANADA WAITING FOR OHIP! DX IN 2006, AND NOT ON MEDS, B/C NO COVERAGE! I'VE TAKEN STEROIDS FOR FLARE UPS.......

                  Comment


                    Originally posted by littlebelle View Post
                    I am sure there are many out there. I have met a few. So Where in Canada are you from? If you do not want to say that is fine. Just pop in and say Hello.


                    I think since our insurance issues and medical supplies issues are different from our US friends we should have a place to discuss how our system works. What trials we have going etc.

                    Looking forward to meeting you all

                    I live in Barrie Ontario 100 KM from Toronto.

                    Comment


                      Fellow Canadian

                      Hi littlebelle,

                      I am originally from Bradford, Ontario. My sister lives in Barrie, parents in Wasaga. I am now in Richmond, B.C. which is just outside of Vancouver. Our medical system is very different.
                      I heard the Doctor situation is very difficult in Barrie because of the shortage of Physicians.
                      Have you heard about the new treatment (CCSVI).
                      Anyway, hope to hear back from you.

                      Comment


                        Originally posted by bubbadan View Post
                        If you think that its any easier in the US you are sadly mistaken. I've had M.S. for 18 years now and it took numerous testing to finally come down with a diagnosis.
                        As a US citizen, I am more familiar with Canada's healthcare system than many Canadians in certain areas, as I have worked in a very specialized pharmaceutical area there and was responsible for all of Canada.

                        Have the MRI wait lists around Toronto improved any? What is the average wait time for an MRI where you are at in Canada?

                        When you receive injectible meds, are they properly packaged to maintain correct temperature during shipment?

                        -- This can be a huge issue for certain meds especially given the harsh winters there. Until a few years ago Canada had no regulation mandating drugs be shipped at correct temps. There is now a HC/SC Guideline for it -- I am just looking to see if it has been fully implemented yet there.

                        I'll be checking in from time to time. I love Canadians.

                        A bientot.

                        Comment


                          I am in rural Manitoba - I am on Avonex and in my discussions with my pharmacist - the meds are on regulated temperatures, and seem to be well-monitored in delivery from the med supplier to the pharmacy.
                          As far as MRIs in Manitoba - there are wait times, yes - however, I do believe that they are prioritized according to presenting symptoms and rate of onset. In my diagnostic history, my first MRI was in two months - then when still "fishing" for more info when I had mild symptoms, I then waited for 6 months - after my 1st year follow-up with the neuro. An acquaintance I know had an MRI within 1 day after he presented with rapid onset of significant symptoms - he had a confirmed MS diagnosis within days (they thought they were looking for a brain tumour). So, while I would have liked to have my tests sooner, in the big scheme of things, it may have been more appropriate use of resources. In my other experiences; when there were urgent things going on and I needed medical attention and tests quickly - I got them. Pros and Cons in both US and Canadian health care.

                          Comment


                            I've been living with MS since I was 21(when I was initially diagnosed), I'm now 30 and have been fortunate to have had only 2 relapses (one about 4 months ago and 1 when I was diagnosed) now I'm in the process of applying for Pharmacare and going on Rebif hopefully soon. But both times I went for MRI scans I waited 2 months each time. Does anyone know how Pharmacare works here in MB??? I'm a little concerned with the cost etc and how that works?? I'm not too 'swift' when it comes to this stuff lol

                            Comment


                              Greetings from Vancouver

                              I am afraid the MS Society in BC is not too amenable (or the docs) to ccsvi.

                              When I sent in my application to ubc, I was told they are not doing any studies till the summer....so call back then.....

                              Originally posted by littlebelle View Post
                              I am sure there are many out there. I have met a few. So Where in Canada are you from? If you do not want to say that is fine. Just pop in and say Hello.


                              I think since our insurance issues and medical supplies issues are different from our US friends we should have a place to discuss how our system works. What trials we have going etc.

                              Looking forward to meeting you all

                              I live in Barrie Ontario 100 KM from Toronto.

                              Comment


                                Greetings gals,
                                Ottawa here. I see a neuro at the MS Clinic here in town. DX 2001 with worsening r/r. I am now spms. I've been on Betaseron, did Novatrone treatments , and now on Copaxone.

                                Comment

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