Calling all Canadians

[sidneygirl]

Welcome!

Hi Carme, I live in Sidney BC
Welcome to MsWorld, it's a great place to find information and meet great people!

[Pandora]

Another Canadian

I live in Calgary- age 49- Diagnosed Sept 2007. I suffer from dizziness daily, it's not an ear infection, it's not low sugar, does anyone have any thoughts how to combat the daily issues? Have a desk job and even sliding back in my chair or standing too quickly makes me queezy for a moment.

[Mamabug]

I live in Calgary- age 49- Diagnosed Sept 2007. I suffer from dizziness daily, it's not an ear infection, it's not low sugar, does anyone have any thoughts how to combat the daily issues? Have a desk job and even sliding back in my chair or standing too quickly makes me queezy for a moment.

I had severe dizziness in 2002, with my first flare, pre-diagnosis. Other symptoms were stroke-like, at the time. My physical therapist gave me exercises, where I could control what I did that would trigger my dizziness. For me, the trigger was head movement (which I hadn't realized -- she made the observation).

So, she had me nod my head slowly, only until it was difficult to tolerate, in an effort to re-train my brain to tolerate those movements. I'd been struggling with the dizziness for a month, prior to her assistance. It was so severe, that I lay in a recliner all day, because an upright position would cause nausea and vomitting.

Perhaps a physical therapist could help you with your symptoms. You'd likely need a doctor's referral, to a P.T. specifically trained in vertigo issues.

Or, maybe you could figure out what triggers your own dizziness and design your own program to help yourself.

Best wishes. My dizziness was so disabling, that it caused more problems than the loss of use of my left side. Problems began improving immediately upon beginning exercises, and went away in a timely manner.

~ Faith
U.S. Resident, Canadian citizen

[cj4music]

sort of new

hi everyone -
I'm fairly new to the site -- I think it's great that everyone is so supportive -- the posts have helped me through some rough moments! Thanks!

I was diagnosed in 2007 after a long time convincing doctors it wasn't my imagination... and have been on rebif for about 3 months now.... I have been going to a great support group here in the lower mainland, and just thought I'd finally post something on here and say hi.

CJ

[Laauurraa]

Hi, I'm Laura. I am 21 and live in Ottawa, ON. I was disgnosed at 16 (2004), and am currently on Avonex

[kathrina]

Hi there, glad to have found this Canadian site for MS,just diagnosed in October after 13 years of seeing Neuro`s and MRI`S. diagnosed with SPMS ,only on baclofen and neurontin but they have really helped me with mobility,just great,I only walk with a cane outside ,really because of the ice. Find myself very tired around 4 o`clock but usually have a short nap an okey for awhile. Having a slight problem with knowing who to tell, have only told very close family members like son and daughter and really close girlfriends.Havn`t told my parents or brothers etc, they live in other provinces and have always told them I had a back problem,herniated discs which is true,twice. Worked as a Nurse for 34 yrs and we nearly all have some back problems so they never questioned it. I really have no one to discuss it with except Drs ,I am really lucky to have a great MS specialist in Calgary but they are so busy. Havnt been to the MS Sociey yet either,is that a good move or not. Exactly what do you do at the MS clinic,apparently that is next for me. All this is kind of scary right now. Thanks for letting me vent, my husband is wonderful but you cannot expect someone who does not have the disease or feel the symptoms to understand, thats not fair.

[sea2006]

Canadian eh?

Hi there fellow Canadian. Sorry to hear about your DX. but you have found a good place to come. MS World is a great place too. You'll meet many new people there all with many of the problems you have.

I was Dx'd back in May of 1989, long time ago. I'm 61 now and still pretty mobile with no MS meds. I'm Chronic Progressive. Took many years to get my Dx though. I wear orthotics on both legs, use a cane or my scooter for longer trips.

I would say, let your parents know, then they will be able to get a grip on your condition. My hubby was a great support too, and my Sister has always been there for me, she's my best friend. My "kids" have also been great!!

There now I guess I've rambled on long enough. Nice to hear from a fellow Canadian, there don't seem to be many of us on MS World. That's where I usually go.

Sharon

[Bliss]

Hi everyone
This is all very new to me. I just found out I had ms a few weeks ago. My neuro was a joke. He didn't even tell us what kind of ms I have. i just started taking betaseron. So far so good.

[lessaleew]

I'M IN MILTON JUST 15 MINUTES AWAY

HI iM IN MILTON JUST 15 MINUETS AWAY. NO DX YET I'M WAITING ON RESULTS FROM CONTRAST MRI SHOULD COME IN ANY DAY NOW. I WONDER IF THERE ARE MORE OF US CLOSE BY. ALL THE BEST

Hi canadians,
I live in guelph, and was dx in 2004.

[Deborah Ann]

HELLO ALL

HAS ANYONE HEARD OF THE LATEST RESEARCH THAT WAS DISCUSSED ON TELEVISION THE OTHER NIGHT.IT WAS ABOUT THE STEM CELL RESEARCH THAT HAS BECOME AVAILABLE.DOES ANY ONE HAVE ANY IDEA WHERE TO WATCH THAT AT.

[Cherrymom]

Back on

After being told you do not have MS (2 or 3 lesions), numbness, tingling, mobility issues, TN. I had a negative LP (will never do that again). With a referral to a Neurosurgeon for the ongoing TN - he tells me (after reviewing the same reports) that he wants me to go to the MS Clinic and see a MS Neurologist. This journey has only been a couple years for me and I left for the past 6/8 months but it keeps coming up so I guess we'll find out what they say at the clinic.

[prairiegirl]

After being told you do not have MS (2 or 3 lesions), numbness, tingling, mobility issues, TN. I had a negative LP (will never do that again). With a referral to a Neurosurgeon for the ongoing TN - he tells me (after reviewing the same reports) that he wants me to go to the MS Clinic and see a MS Neurologist. This journey has only been a couple years for me and I left for the past 6/8 months but it keeps coming up so I guess we'll find out what they say at the clinic.

Hey Cherry, aren't you in BC? I am glad you will see an MS specialist. They seem to know what they are looking at fairly quickly. I hope that you get some answers, though, I am sad that something is wrong with you. (You know what I mean.) Let's hope they can figure it out and help you.
*hugs*

[lessaleew]

Just DXed from Halton

Hi
I am so new I don't even know the questions never mind the answers. All I do know is i physically hurt, get dizzy, and confused when stressed. There seems to be a lot to learn so I will be hanging out for a while.

[sidneygirl]

Hi Canadian newbies

Welcome Leesa! Sorry to have to meet you this way, but very nice to meet you .
When the questions start coming, please don't be afraid to ask. Everyone here is very kind, understanding and gentle when need be.
Bye for now,
Connie in Sidney BC

[Cherrymom]

Ya prairiegirl - I'm in BC. I still haven't heard back from him (the Neurosurgeon) and then my GP's office called with a new Neurologists appointment so now I don't know what to do. I think I'll contact the Neurosugeon and see what he says about this Dr. I guess... I don't really know.