Calling all Canadians

[littlebelle]

I am sure there are many out there. I have met a few. So Where in Canada are you from? If you do not want to say that is fine. Just pop in and say Hello.


I think since our insurance issues and medical supplies issues are different from our US friends we should have a place to discuss how our system works. What trials we have going etc.

Looking forward to meeting you all

I live in Barrie Ontario 100 KM from Toronto.

[Rushy]

Fellow Canuck

Nice to see someone else from Canada. I am a 45 yr old female diagnosed in July of 2006, Beta Babe since August 2006.

I live in Cobourg, Ont. about 100 km east of Toronto.

[misshayleesmom]

Hi Littlebelle!

How have you been lately?
How is St. Mike's working out for you?

Same old same old here.

Have a nice day..
Cindy

[littlebelle]

Nice to see someone else from Canada. I am a 45 yr old female diagnosed in July of 2006, Beta Babe since August 2006.

I live in Cobourg, Ont. about 100 km east of Toronto.

Wow I know a person in Corborg. Yup my friend Carrie lives there small world.

[littlebelle]

Hi Littlebelle!

How have you been lately?
How is St. Mike's working out for you?

Same old same old here.

Have a nice day..
Cindy

Actually this is one of my good weeks I think the steriods really helped.

I go back tomorrow my file got moved from the Neuro office to the MS Clinic not sure who I am seeing there. Will let you know tomorrow.

So how is it going with you. Any luck getting some help?

[misshayleesmom]

Nope,

Went for mri and blood work. All neg of course.
Doc says its neurological, but won't do anything else.
Gave me med for "migraines" said it caused my vision problems.

I've never had migraines, just my eye hurts.. then i can't see.

Optholmologist says its neurological.

I had a reaction to the migraine med.. i feel like a guinea pig..

I broke my foot in may, so doc knows about this.

He's frustrated.. cause as he says "he doesn't know what more to do for me.. you've had all the tests.. you've seen a specialist.. you've seen a neuro (ARTS) .

So right now as i stand he will only do mri's bi-yearly and only yearly if sx get worse.

Going down the stairs breaking a foot , i thought would at least put up a red flag since i have trouble feeling the stairs.. i already told him a year ago i can't feel the stairs.

I'm just taking it day by day, feeling not too bad lately.
I'm getting cast off on Thursday. I can't wait!!

Unfortunately, I think the only help i'll get is when something really bad happens like it did for yourself..
that's what scares me.. but i have no other choice.

You know how hard it is to find a doc around here and even then, if all tests are clear i'm afraid i'll just get the same treatment.

If you see Dr. Marchetti at St. Mike's he's very nice but he didn't even look at my MRI while i was there..he only read the report and even then didn't order any additional tests. He called me at home 3 days later about my MRI. So i don't know how confidant i would feel about him..

With you having lesions.. hopefully you'll get some answers..

Good luck and keep me posted.

Cindy

[Mistigris]

Hi Littlebelle:

We've chatted. I'm in Richmond Hill a little south of you. My thoracic MRI was clear - limbo continues. Seeing my regular neuro this Friday (13th - how appropriate).

[littlebelle]

If you see Dr. Marchetti at St. Mike's he's very nice but he didn't even look at my MRI while i was there..he only read the report and even then didn't order any additional tests. He called me at home 3 days later about my MRI. So i don't know how confidant i would feel about him..

Oh sorry to see you are having so much difficulty still. So what actually did Dr. Marchetti do if he did not look at your MRI's. Who ordered the tests him or was just reading what was sent to him. Seems like a waste of time did he at least do a neuro examine. And awful long way to go for him to do nothing.

Sure hopes it gets better

[littlebelle]

Hi Littlebelle:

We've chatted. I'm in Richmond Hill a little south of you. My thoracic MRI was clear - limbo continues. Seeing my regular neuro this Friday (13th - how appropriate).

Yes we saw the same Toronto Neuro. So sorry your appointment did go well. When I saw him it was not just for MS but to figure out what was causing the problems I was having. At first he thought it could be a rare from of lupus of the spine. But after testing said nope all clear there.

He told me to be patient I was a difficult case. And he is used to getting tough cases. I am so sorry he was not good for you

[misshayleesmom]

I really liked him, very easy to talk to.

He did do a nero exam.
He said flat out that he did not think it was MS.
He also said that it could be a number of different things.. end of story... no further testing.. he did say however that he did want me to have a yearly mri.

He said he could be proven wrong though as he didn't know what it was , at this time he didn't think it was ms.

With my sx getting worse it just makes me wonder.. my sx were not as severe when i did see him so i can understand that i would pass the neuro exam.

I have since started with tremors in my arm/hand to where i cannot hold a coffee cup.

I have no neuro at this point and pcp is tired of seeing me and tired of going back..

So i'm trying to be patient and get on with my life till the answers finally appear..

i just wished Marchetti could have at least given me more directions or answers it was basically mri's clear=no ms.. he just said it a little nicer than Arts did.. just no answers..

LIke i said, i'm just trying to do the best i can when i can , that's all really i can do because it can be so overwhelming and consuming if you're constantly trying to get any kind of dx of some sort.

[littlebelle]

Well that is one way to kill a thread move it to cafe.

I am sad because our medical system is different than the US. And it would be really nice to get to know other Canadians and the process you go through for adaptive equipment, disability claims. We also get some different drugs Our drugs trials may be a different time. . Now this thread will die

Because I do not think many check out the cafe.

To me this is not a cafe issue but not sure were it fits. Where is a good place for physio since I have been and they new nothing about MS. ETC.

Oh well it was worth a try.

[misshayleesmom]

I agree, i think it's important too..
It's not idle chit-chat..it has to do with our health and questions about it.

I never know where to post half the time...

Thanks for trying anyway.

[Carol]

Hi Littlebelle!

Vancouver Island here.

C

[KeepinCool]

I live in Ottawa, am 52 and diagnosed PPMS in 2004, but I figure it's been around long before that.

I think we're lucky to have the medical system we have, even if it is lacking at times, compared to our neighbours to the south.

[laurasecord]

I was going to post a reply to this, when suddenly it was moved. After searching, I found it here - I don't normally go on Cafe. Why couldn't this stay on the General Questions?
I live in Western Canada (Saskatchewan).
Laura
Littlebelle, can you call some physio clinics and ask if they have anyone that specializes in MS?