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    #31
    I looked online and Dr. Wahl is dx w/ SPMS. I have not changed my diet, and continue to eat as healthy as I can.

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      #32
      Just starting the Wahls Protocol

      Originally posted by poppydarling View Post
      Joanne, I am in complete awe of your healthy lifestyle -- it's what I can only dream of! It is frustrating to be lead this way and that, but I think there are so many variables--including the nearly completely uncontrollable "environmental toxins"--that it's impossible to say exactly what combination of elements bring about disease or successful healing. It's frustrating when our best super-human efforts don't bring about the changes we want (I mean, living without bread or cake is barely life to me--this better be worth it )

      I don't think we can ever go wrong with a super-nutritious organic diet, though, no matter what else happens -- it's the main thing in our control. It might not save us from the worst of autoimmune dysfunction but at least we're giving our bodies a fighting chance. The Protocol is so heavy on living foods -- 9 cups a day! -- and I don't know how I'll even approach ingesting that much, even with whole-food smoothies. But I'm going to try. And I'm going to give it at least 3-4 months before I give up.
      I recently got the book, read all the way through it, went shopping, and started "some" of the diet already. Not ready to take the full dive into 100% healthy non this and that yet. Starting with no gluten, since that is something many people have issues with, adding fruits and vegetables into my diet since I rarely ate those ever, and seeing how I feel for a while. I have never been a healthy eater, I eat for enjoyment...but since I have gone downhill SO fast in the past year, was walking jogging 3-5 miles a day, to barely walking around the grocery store and mostly laying around all day, it can't hurt to give healthier eating a try. Hoping to regain some of my strength back, that is most important to me now, I can deal with the other symptoms.

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        #33
        Originally posted by shihtzu View Post
        I recently got the book, read all the way through it, went shopping, and started "some" of the diet already. Not ready to take the full dive into 100% healthy non this and that yet. Starting with no gluten, since that is something many people have issues with, adding fruits and vegetables into my diet since I rarely ate those ever, and seeing how I feel for a while. I have never been a healthy eater, I eat for enjoyment...but since I have gone downhill SO fast in the past year, was walking jogging 3-5 miles a day, to barely walking around the grocery store and mostly laying around all day, it can't hurt to give healthier eating a try. Hoping to regain some of my strength back, that is most important to me now, I can deal with the other symptoms.
        ShihTzu, good luck! It is challenging but I think it's worth it. I decided to do the MS Best Bet diet designed by Dr. Ashton Embry and I have to say, I feel like a million bucks! I hope that when I go to the doc at the end of November, that I haven't gotten any worse on any of the scales, and if so, I'll feel that that's a huge success.

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          #34
          Update

          Just thought I'd chime in here too since there's been activity on this thread again

          A few months ago I saw a new Neurologist who is also a Functional Medical Doctor. He applauded my commitment to eating healthy and actually recommends the Wahls Protocol to his patients. He also encouraged me to continue on the path that I'm on ... Wahls Protocol, extra sleep, rest, reduce/eliminate stress, exercise as best as I can, etc. All of those common sense healthy lifestyle choices we should all be doing any way.

          I like him ... but I have not been able to see him as a 'functional medical doctor' yet. Maybe some day soon. We'll see.

          But even with all of the positive things I am doing, I continue to go 'down hill' and my MRIs are still coming up clear. We'll see what the future holds.

          Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
          Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
          EDSS of 5.5, sometimes 6.0

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            #35
            Originally posted by jjs View Post
            Just thought I'd chime in here too since there's been activity on this thread again

            A few months ago I saw a new Neurologist who is also a Functional Medical Doctor. He applauded my commitment to eating healthy and actually recommends the Wahls Protocol to his patients. He also encouraged me to continue on the path that I'm on ... Wahls Protocol, extra sleep, rest, reduce/eliminate stress, exercise as best as I can, etc. All of those common sense healthy lifestyle choices we should all be doing any way.

            I like him ... but I have not been able to see him as a 'functional medical doctor' yet. Maybe some day soon. We'll see.

            But even with all of the positive things I am doing, I continue to go 'down hill' and my MRIs are still coming up clear. We'll see what the future holds.
            Thank you for letting us know! I've only been on the diet for about two months and I have a feeling it's going to take up to a year to really start to see results. That's what I'm praying for anyway!

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              #36
              Originally posted by poppydarling View Post
              Thank you for letting us know! I've only been on the diet for about two months and I have a feeling it's going to take up to a year to really start to see results. That's what I'm praying for anyway!
              Checking in
              How are you doing on the diet? And just as an update, the F.M. appointment did not go well and I will not be going back.

              Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
              Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
              EDSS of 5.5, sometimes 6.0

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                #37
                my input

                I have been on it for a year. I am doing really well. I have lost 80 lbs. I feel really good. I have not been doing totally well, just had my hip replacement, and hoping it continues to improve since I had this done.

                I have been doing mostly the paeleo whals. I have been doing some rice, quinoa occasionally.
                God Bless and have a good day, Mary

                Comment


                  #38
                  Originally posted by kelm10 View Post
                  I have been on it for a year. I am doing really well. I have lost 80 lbs. I feel really good. I have not been doing totally well, just had my hip replacement, and hoping it continues to improve since I had this done.

                  I have been doing mostly the paeleo whals. I have been doing some rice, quinoa occasionally.
                  That's great to hear

                  Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
                  Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
                  EDSS of 5.5, sometimes 6.0

                  Comment


                    #39
                    She had chemo too

                    My understanding is that Dr Wahls also had chemo. Starting w a baseline of no immune system may very well have made a big difference. I also wonder if maybe she has Celiac instead of MS.

                    Ive been toying w trying a diet and wish we really had some good data on them. I eat fairly healthily but am not religiously committed to one. Hate to bother if not necessary. Life is already challenging enough!

                    I read that the reason they're looking at fatigue in the study is that that is quickly measurable (tho subjectively) whereas accumulation of disability takes longer. They hypothesize that one would imply the other, however.

                    Comment


                      #40
                      Diet

                      I was diagnosed with ppms in 2011. Not in a wheelchair but do use a walker occasionally. I do not follow any specific diet but have been trying for the past few years to eat as clean as I'm able. I try to eat only organic, 100% grass fed, free range, etc. I can't say that my diet is responsible for the elimination of any symptoms, but, would I be worse if I did not eat as clean as I do?
                      I eat this way because allot of the pesticides, herbicides, preservatives, artificial colors, artificial flavors, etc. that are in or on the food that we eat are neurotoxins, and I already have enough neurological problems.

                      Comment


                        #41
                        I have not read a lot on the "Wahl's protocol' but did something that I think was probably very similar a few years back. I was seeing a nutritionist who was a nurse but went back to school to learn about nutrition and how it can help in most situations. Her things were no sugar, no hydrogenated oils, and do not go for the low fat craze.
                        I tried to follow her regimen as rigorously as I could, but I was a single man and did not eat as many vegetables as I should have. I lost a lot of weight and looked malnourished. I felt great though and had plenty of energy. I had to quit seeing her due to some of her protocols and how I expressed them to my family.

                        She performed something called nutrition response testing. I saw her do her presentation three times before I decided to try it. I went thinking that it was a load of stuff and not legitimate in any way. I experienced it though and felt great. I jokingly called her a witch doctor because what she did sounded and looked like voodoo. I wish I could go back to seeing her. I can no longer afford to see her and all the supplements she puts you on. I wish I could do it though.

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                          #42
                          Going to give this a try.

                          Iíve been referred to this diet enough times, itís time for me to try it.

                          I know something will work. Iíll post more a I go along.

                          Originally posted by lukeduke View Post
                          I have not read a lot on the "Wahl's protocol' but did something that I think was probably very similar a few years back. I was seeing a nutritionist who was a nurse but went back to school to learn about nutrition and how it can help in most situations. Her things were no sugar, no hydrogenated oils, and do not go for the low fat craze.
                          I tried to follow her regimen as rigorously as I could, but I was a single man and did not eat as many vegetables as I should have. I lost a lot of weight and looked malnourished. I felt great though and had plenty of energy. I had to quit seeing her due to some of her protocols and how I expressed them to my family.

                          She performed something called nutrition response testing. I saw her do her presentation three times before I decided to try it. I went thinking that it was a load of stuff and not legitimate in any way. I experienced it though and felt great. I jokingly called her a witch doctor because what she did sounded and looked like voodoo. I wish I could go back to seeing her. I can no longer afford to see her and all the supplements she puts you on. I wish I could do it though.
                          ---------------
                          "It's never crowded along the extra mile." --Dr. Wayne Dyer

                          Comment


                            #43
                            Old thread

                            This is an old thread (2014) that has been revived several times (2016 and 2018).

                            Are there any updates? Has anyone been successful long term?
                            ~ Faith
                            MSWorld Volunteer -- Moderator since JUN2012
                            (now a Mimibug)

                            Symptoms began in JAN02
                            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                            .

                            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                            Comment


                              #44
                              Originally posted by Sheri
                              I also wonder if maybe she has Celiac instead of MS.
                              She's a doctor and was treated at one name-brand MS center. Thus, she's definitely got MS.

                              To add into this, I did the Wahls diet for a bit over a year. Eating all of the greens was a royal PITA -- it's just hard to do. Tests on myself with diet reveals one thing: there is definitely ties between diet and MS.

                              The problem is our diet is so complex and we're constantly bombarded with commercial advertising to eat crap. It's hard to resist the non-stop propaganda from the media. And once you add in family and cultural pressures, diet is hard to do.

                              Another thing that sank deep with me is that gluten is one key. I can eat wheat/gluten with no problems. But the several times I've cut out gluten, in 7-10 days I feel a difference that is so dramatic it's jaw-dropping. It's like someone removed a drunken haze from myself; the mental clarity and sharpness increases dramatically and it seems like someone added 15 IQ points to my brain.

                              Being gluten-free is a PITA. But the difference is such -- again, I only notice it when stopping gluten -- that I happily avoid gluten like a plague.
                              59M / RRMS / Dx1987 / Ocrevus

                              Comment


                                #45
                                This post was started in 2014, but page 3 has posts from 2015 -2018.

                                Here's my question:
                                - Do you have updates?
                                - Those of you who posted 4 or 5 years ago, what are your symptoms like?
                                - How has this changed your life?

                                I started seeing a functional medicine doctor about a year ago. I've instigated many diet and lifestyle changes since then.

                                A couple months ago, after I expressed my discouragement with my slow progress to becoming symptom free, he loaned me his copy of The Wahls Protocol.

                                I've read some chapters, skimmed others, and I still have more to read.

                                Many of her dietary recommendations are similar to his, at least to the Wahls diet ( she has three diets). I've only started to look at Wahls Paleo and Wahls Paleo Plus. They seem to incorporate some concepts that he doesn't.

                                I like the idea of the meal plans to help with getting started. But I have so many food sensitivities that Dr G's lab work identified that I'd need to modify then significantly. I also don't care for salads; never have. I don't think I could make myself eat so many of them. I love vegetables -- in smoothies, or cooked. Sometimes raw. But I'm not a salad greens person. I'd need to find ways to add raw greens to smoothies, or cook them up in a stir fry or something.

                                Here's my questions again:
                                - Do you have updates?
                                - Those of you who posted 4 or 5 years ago, what are your symptoms like?
                                - How has this changed your life?
                                ~ Faith
                                MSWorld Volunteer -- Moderator since JUN2012
                                (now a Mimibug)

                                Symptoms began in JAN02
                                - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                                - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                                .

                                - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                                - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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