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CHANGES AT MSWORLD - MSWORLD'S CLOSURE

We began with a mission and purpose to help others living with MS.

We were excited to get going!

And hit a few bumps along the way…

However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!

July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.

We need a financial miracle to keep going forward.

We thank all for your support.

MSWorld's website will close on October 16, 2024.

“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”

God Bless you, Kathleen

Kathleen Wilson
Founding President
❤️

we leave knowing that
we did our best and
stayed true to our mission and purpose.


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Gratitudes journal

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    #136
    I enjoyed introducing my 29 y.o. son to Kenny Roger's music yesterday. We listened to a bunch of YouTube videos together.
    ~ Faith
    MSWorld Volunteer -- Moderator since JUN2012
    (now a Mimibug)

    Symptoms began in JAN02
    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08    .
    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

    Comment

      #137
      Grateful for Easter this year. Maybe more so than ever before. It certainly is strange and very different from past Lents.

      Is it likely that with elimination of most functions, dinners, gatherings, the focus of the season returned?

      These last 4 weeks have opened my eyes, yet again, to what is important.

      As a side note but also a part of my positivity is my trainer. Without any sessions since just before St Patricks Day, she has been in touch almost daily. I have received "care" packages, conversation and birthday surprises over these weeks! Even a masked, one-on-one, out in the air session!

      The idea of relationships and how important they are is a blessing that needs to be nurtured continually. So let's try to keep a smile even if it remains hidden behind a mask, or for my cyber friends, behind a handle.

      502E79 (née Jer)

      Comment

        #138
        Very slowly the temperatures are rising. Intermittent sun too!, and despite the virus, people are enjoying being out,

        despite the gloves & masks. Everyone appears happier. It's getting better all the time.

        It may remain different in some ways, but we are adjusting and like the late spring I'm grateful for it!

        Comment

          #139
          Grateful that things are starting to open up. I still plan to stay at home. But it's a sign of hope.
          ~ Faith
          MSWorld Volunteer -- Moderator since JUN2012
          (now a Mimibug)

          Symptoms began in JAN02
          - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
          - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08          .
          - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
          - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

          Comment

            #140
            Early Day

            Grateful for the early part of the day, when I am able to move around the best and accomplish the most.

            I wrote this haiku (5-7-5 syllable lines) about it:

            Before the sun rise
            Energy begins to flow
            Joyfully I move
            PPMS for 26 years (dx 1998)
            ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

            Comment

              #141
              Originally posted by KoKo View Post
              Before the sun rise
              Energy begins to flow
              Joyfully I move

              Forgot to mention in the Goal Posters thread that I love this.

              It is wonderfully stated and in my case totally true.... although movement is slower, any movement is welcome!

              Comment

                #142
                Originally posted by 502E79 View Post
                Forgot to mention in the Goal Posters thread that I love this.

                It is wonderfully stated and in my case totally true.... although movement is slower, any movement is welcome!
                Thank you Jer! I'm glad that you understand what I was trying to say. Moving is slow-going for me as well, but moving is a tad bit faster in the early part of the day, which is a real joy for me.

                Haiku is simple, but not easy.

                Trying to convey coherent thoughts, feelings, ideas, etc., using only 17 syllables in total, can be tricky.
                PPMS for 26 years (dx 1998)
                ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                Comment

                  #143
                  Originally posted by KoKo View Post
                  Trying to convey coherent thoughts, feelings, ideas, etc., using only 17 syllables in total, can be tricky.

                  Yes, but you succeeded nicely. And yes, tricky...

                  So... half-asleep, in bed, 2 am... no longer sheep, I'm counting syllables! I need a life.

                  Comment

                    #144
                    On Saturday, Mother's Day weekend, I called two of Aunts whi live in Canada (ages 86 and 71) and had a long, wonderful phone visit with each of them.
                    ~ Faith
                    MSWorld Volunteer -- Moderator since JUN2012
                    (now a Mimibug)

                    Symptoms began in JAN02
                    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08                    .
                    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                    Comment

                      #145
                      My daughter sent me a Facebook Message yesterday and said it was from my 4 y.o. grandson. It was 10 rows of emojis -- mostly faces (happy faces, silly faces, etc) and a few tennis rackets, footballs, apples and 2020 graduates.

                      First time he ever did that!
                      ~ Faith
                      MSWorld Volunteer -- Moderator since JUN2012
                      (now a Mimibug)

                      Symptoms began in JAN02
                      - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                      - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08                      .
                      - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                      - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                      Comment

                        #146
                        My housekeeper, again.

                        I am hiding / staying out of her way as she whirlwinds through the house. You can actually smell clean!

                        Earlier we had a little incident... There was a spider on the ceiling. I left her with the choice: use the vaccume or shepherd it out the door.

                        Haven't heard door or vacuume ....

                        But I still hear her. Peace in the Valley.

                        Comment

                          #147
                          Originally posted by 502E79 View Post
                          My housekeeper, again.

                          I am hiding / staying out of her way as she whirlwinds through the house. You can actually smell clean!

                          Earlier we had a little incident... There was a spider on the ceiling. I left her with the choice: use the vaccume or shepherd it out the door.

                          Haven't heard door or vacuume ....

                          But I still hear her. Peace in the Valley.
                          Maybe she's petting it?
                          PPMS for 26 years (dx 1998)
                          ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                          Comment

                            #148
                            Originally posted by KoKo View Post
                            Maybe she's petting it?

                            Word has it: She grabbed a long "swifter," reached up toward ceiling, crafty spider spun silk on descent, she caught silk, & with door ajar deposited her friend on entrance rail. Who doesn't love a happy ending?

                            Comment

                              #149
                              Originally posted by 502E79 View Post
                              Word has it: She grabbed a long "swifter," reached up toward ceiling, crafty spider spun silk on descent, she caught silk, & with door ajar deposited her friend on entrance rail. Who doesn't love a happy ending?
                              That was certainly quite 'Zen' of her!
                              PPMS for 26 years (dx 1998)
                              ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                              Comment

                                #150
                                Beautiful weather this evening. We watched the Saturday night cruising Main activity that started a couple of months ago. Lots of cruisers waved at us spectators.🏍️🚙🚗🚕🚐
                                ~ Faith
                                MSWorld Volunteer -- Moderator since JUN2012
                                (now a Mimibug)

                                Symptoms began in JAN02
                                - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                                - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08                                .
                                - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                                - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                                Comment

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