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    Urine Retention?

    I was wondering if anyone has experienced urine retention. I have it but with a twist....At times I can smell urine in my nose or taste it in my mouth but after I pee it goes away. No matter how much water I drink it doesn't help at all. My pee has a very strong smell and is very dark. The only time it doesn't have the odor is if I drink alcohol. I know this sounds very strange and I am a little embarrassed about talking to the dr about it.
    In limbo waiting on DX

    #2
    Can't say I have had this problem. But you really do need to talk to the Dr about it. One can really have problems with urine retention and those of us with MS are very prone to this. You may want to start out by getting a UA (urine test) before you see the Dr. and then you can discuss it and use it as a way to breech into your symptoms that you have been having and your MS Doc or a General Practitioner can recommend a Urologist for you.
    Luck to you in your search for answers

    Comment


      #3
      oSandi

      I would definitely discuss this with your doctor. While I have never been able to taste/smell urine before voiding, I have struggled with urinary retention for 10+ years, but made repeated trips to washroom in order to completely empty - therefore no bladder infections.

      Two years ago I finally got the nerve to talk about it with doctor and was referred to a Urinary specialist. I learned how to self-cath and wish I had done so earlier because of the freedom it brings.

      Please find the courage to discuss it, you'll be glad you did.

      Comment


        #4
        When my problem started I had my pcp run tests and they all came back normal. When it first started coming on there would be periods of it disappearing but now it's constant. I see my second neuro this thurs and I will make sure I bring it to his attention. Thanks for your replies.
        In limbo waiting on DX

        Comment


          #5
          bladder retention relief

          I started using LDN for bladder retention/starting and stopping/not emptying. It has practically healed all the issues I was having. (Low dose Naltrexone). Now I go fully and empty completely, it's wonderful! I thank God for it. From what I've read if I stop with the LDN then the symptoms may return, so I don't think it's a permanent fix. But the relief from having those bladder issues sure makes it worth the $40 a month!

          Comment


            #6
            Bladder retention caused by neurogentic bladder

            My bladder retension is due to a neurogentic bladder, underactive type, UAB, (not overactive type). I tried a smooth muscle stimulant med but it didn't help. This last week I had the InterStim implant. I am still changing the amplitude volts to get the results of my test external stimulator which successfully greatly reduced my hesitancy and increase my urinary stream. Time will tell if it reduces my urinary retention. I chose the InterStim implant because I didn't want to self cath and the external stimulator helped. Note: the InterStim also reduced my leg/foot spasticity greatly. I no longer have so much of a problem moving my legs after sleeping. That alone is worth the implant. I can't believe the InterStim is not discussed much (if any) on this forum. Am I the only MSer with UAB, (no)!

            Comment


              #7
              Originally posted by Shellee View Post
              I started using LDN for bladder retention/starting and stopping/not emptying. It has practically healed all the issues I was having. (Low dose Naltrexone). Now I go fully and empty completely, it's wonderful! I thank God for it. From what I've read if I stop with the LDN then the symptoms may return, so I don't think it's a permanent fix. But the relief from having those bladder issues sure makes it worth the $40 a month!
              i have been using LDN for years but it has had no effect on my retention problems. i am now seeing urologist to see how to handle it.

              Comment


                #8
                just learning to self-cath and hate the idea - but why is need on and OFF

                first message on any board here so a little confused as why I got someone else's quote (which I erased) when I was just trying to send a message.

                Most messages on this track are old but it was nice to read that other people cannot urinate. I went to a urologist over 8 months ago who did all the tests, just walked in, said self-cath four times a day, and walked out - they had someone teach me but for some reason, just being cathed (after two weeks of PAIN as I could not get in to a urologist and I could barely go), I was able to urinate. However just this week my ability to urinate went downhill. first, I was wondering if it was related to stress as last week my Dad was traveling across the country and had a stroke and just finally got him home for a zillion appointments two days ago AND I am trying to leave for two weeks to see my daughter in Germany.
                So, could this be stress? that if I just tried to relax more I could go? I did bite the bullet and self-cathed twice in the past two days (with clear evidence I am retaining alot in my bladder). I had used a sample of something called Coloplast Speedicath. It was fine, small and discreet. I called the urologists office trying now to get some to leave next Weds. and of course I have not had a phone call.
                There were no kinds of wipes so I see that referred to in the discussion but I didn't use anything - just wanted to get it over with and move on with my life. Do you have to use wipes?
                Does anyone just do this occasionally as it has not really been explained to me why you would have to if you manage to urinate and you have not gotten UTI's. I had cancelled my six month follow-up with that urologist as I had not had to cath that entire time so why go back.
                And even if I need an appointment to get the catheters, I would never get in by next weds as it takes MONTHS to get appointments for anything. I cannot even find a neurologist in central Pennsylvania who can even see my father after his stroke that you do not have to wait MONTHS. I am going to try the route of asking for samples and hope I get some (or do not need them) while I am traveling. Would love some feedback.

                Comment


                  #9
                  I just began self-cathing this past week so I'm on here reading all I can and sharing my experience as well. The way it was explained to me, you really need to wash your hands well and use wipes to avoid introducing bacteria into your bladder. It doesn't have to be sterile, but should be as clean as possible. After reading on here today, I ordered some BZK wipes from Amazon that were pretty inexpensive.

                  My bladder doesn't fully empty. I can't make myself go even when there is still urine left inside. Although I'm sore from self-cathing (or attempting to, as I'm not always successful), when I have been able to empty fully it is a wonderful feeling I haven't have in a decade. That's why I'm willing to push through.

                  I still go without cathing in between, but try to cath in morning and before bed when I'm fullest. I've been sleeping through the night since I can't remember when, and I'm no longer feeling the urgency or having accidents any more.

                  Thinking of a good night's sleep and all the money I'll save on Poise pads motivates me to push through this learning experience.

                  So thinking you don't have to cath, you may be like me and think you are empty but really you are not. When I had the urodynamics test I thought I was empty and the tech cathed me and got 200ml more out that i had retained!

                  To me the difference is a more empty feeling and longer times between bathroom visits with less accidents in between.

                  I'm sorry you have to wait so long for doctor visits but it might be worth it to see the urologist again for a follow up. Since starting CIC I've been kicking myself for waiting a decade to address the issues.
                  ~*~ Jeri ~*~

                  Comment


                    #10
                    Originally posted by toyaddict View Post
                    first message on any board here so a little confused as why I got someone else's quote (which I erased) when I was just trying to send a message.
                    toyaddict

                    If you want to reply to a specific poster's message, click on the Reply with Quote tab on the bottom right side of the post you want to reply to, and that poster's message will show up, and you would put your message under it.

                    If you just want to reply to the thread in general, and not reference another poster's message, just click on the very bottom left side tab (blue tab), below all of the posts, Reply to Thread .

                    Any other questions just ask, and we'll be glad to help, if we can.

                    Take Care
                    PPMS for 22 years (dx 1998)
                    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                    Comment


                      #11
                      Blue Satin

                      Originally posted by toyaddict View Post
                      first message on any board here so a little confused as why I got someone else's quote (which I erased) when I was just trying to send a message.

                      Most messages on this track are old but it was nice to read that other people cannot urinate. I went to a urologist over 8 months ago who did all the tests, just walked in, said self-cath four times a day, and walked out - they had someone teach me but for some reason, just being cathed (after two weeks of PAIN as I could not get in to a urologist and I could barely go), I was able to urinate. However just this week my ability to urinate went downhill. first, I was wondering if it was related to stress as last week my Dad was traveling across the country and had a stroke and just finally got him home for a zillion appointments two days ago AND I am trying to leave for two weeks to see my daughter in Germany.
                      So, could this be stress? that if I just tried to relax more I could go? I did bite the bullet and self-cathed twice in the past two days (with clear evidence I am retaining alot in my bladder). I had used a sample of something called Coloplast Speedicath. It was fine, small and discreet. I called the urologists office trying now to get some to leave next Weds. and of course I have not had a phone call.
                      There were no kinds of wipes so I see that referred to in the discussion but I didn't use anything - just wanted to get it over with and move on with my life. Do you have to use wipes?
                      Does anyone just do this occasionally as it has not really been explained to me why you would have to if you manage to urinate and you have not gotten UTI's. I had cancelled my six month follow-up with that urologist as I had not had to cath that entire time so why go back.
                      And even if I need an appointment to get the catheters, I would never get in by next weds as it takes MONTHS to get appointments for anything. I cannot even find a neurologist in central Pennsylvania who can even see my father after his stroke that you do not have to wait MONTHS. I am going to try the route of asking for samples and hope I get some (or do not need them) while I am traveling. Would love some feedback.
                      Hi,

                      I have a neurogenic bladder and have to self cath 4x per day with disposable catheters.

                      It is extremely important to wash your hands, and clean your self well prior to cathing. If you fail to do this you can end up with a horrible UTI that can alter your mind, go into sepsis, etc.

                      Even if you are able to urinate on your own, you might not be emptying out fully and the remainder of your urine is sitting in your bladder which is extremely dangerous in regards to developing kidney failure and/or damage, UTI, etc.

                      It is very important that you go back to the urologist so that he or she can order some tests to see if you are retaining urine, such as the urodynamic test, cat scan of the kidneys, ultrasound, etc.

                      Hope this helps. Please let me know how you make out.

                      Thanks
                      Blue satin

                      Comment


                        #12
                        blue sating under active bladder interstim question

                        Originally posted by junckman View Post
                        My bladder retension is due to a neurogentic bladder, underactive type, UAB, (not overactive type). I tried a smooth muscle stimulant med but it didn't help. This last week I had the InterStim implant. I am still changing the amplitude volts to get the results of my test external stimulator which successfully greatly reduced my hesitancy and increase my urinary stream. Time will tell if it reduces my urinary retention. I chose the InterStim implant because I didn't want to self cath and the external stimulator helped. Note: the InterStim also reduced my leg/foot spasticity greatly. I no longer have so much of a problem moving my legs after sleeping. That alone is worth the implant. I can't believe the InterStim is not discussed much (if any) on this forum. Am I the only MSer with UAB, (no)!
                        Hi,
                        I have a neurogenic bladder/urine retention, type UAB. I have to self cath 4 x per day with disposable catheters which is such a nuisance.

                        My urologist never mentioned Interstim implant. I thought that was for people with an overactive bladder.

                        I also have leg/foot spasticity and take baclofen 10 mg tid which doesn't over any relief. I didn't know that Interstim also helped out with that.

                        This news is great. So very happy for you. I will mention this to my urologist.

                        Thanks
                        Blue satin

                        Comment


                          #13
                          blue sating- LDN

                          Originally posted by Shellee View Post
                          I started using LDN for bladder retention/starting and stopping/not emptying. It has practically healed all the issues I was having. (Low dose Naltrexone). Now I go fully and empty completely, it's wonderful! I thank God for it. From what I've read if I stop with the LDN then the symptoms may return, so I don't think it's a permanent fix. But the relief from having those bladder issues sure makes it worth the $40 a month!
                          Hi,

                          That is great news. I have a neurogenic bladder and have to self cath 4x per day because I have urine retention/starting and stopping/not emptying.

                          I never heard of LDN. Is it an over the counter medication or through a prescription? Did your urologist and/or doctor recommend this?

                          I am curious. I would love to only have to take a medicine, and not have to self cath any longer.

                          Please let me know.

                          Thanks
                          Blue satin

                          Comment


                            #14
                            junckman

                            Originally posted by junckman View Post
                            My bladder retension is due to a neurogentic bladder, underactive type, UAB, (not overactive type). I tried a smooth muscle stimulant med but it didn't help. This last week I had the InterStim implant. I am still changing the amplitude volts to get the results of my test external stimulator which successfully greatly reduced my hesitancy and increase my urinary stream. Time will tell if it reduces my urinary retention. I chose the InterStim implant because I didn't want to self cath and the external stimulator helped. Note: the InterStim also reduced my leg/foot spasticity greatly. I no longer have so much of a problem moving my legs after sleeping. That alone is worth the implant. I can't believe the InterStim is not discussed much (if any) on this forum. Am I the only MSer with UAB, (no)!
                            Hi,
                            You aren't the only MSer with UAB. How is the Interstim working out for you?
                            Thanks
                            Blue Satin

                            Comment

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