I saw my neuro for the first time in almost a year this morning. He said basically my brain lesions are not big enough to dx me with MS - but he believes this is what is going on (I was already dx with MS at Hopkins-they also did t-spine MRI). He said he's calling this Probable MS - and because of the level of disability, he wants to test me for Neuromyelitis Optica.
This was scary to say the least - it took me a few hours to research, get scared that the symptoms match, convince myself I have enough other MS symptoms to still believe it's MS, and get my positive self back in gear!
The problem is - my dh has been nothing but sweet and loving since my definitive dx at Hopkins eight months ago. He suffers from scleroderma and I have cared for him for almost 25 years - he told me this is why he felt he had to do anything he could to help me - all the while watching me deteriorate.
This afternoon, all he did was yell at me. I thought this was because the possibility of NMO was equally as scary to him - but then he started telling me how he would like me to do more housework, more in the garden - that I need to get out and go for a walk (I can get about 25 feet with my cane before I have to stop - ? and have two wheelchairs and a walker - ?) and he doesn't want to hear about my pain or health anymore. I feel really unwanted and confused
I do everything I can here - I plant, harvest, and preserve our raised beds for our food - take care of our dogs and the chickens - do dishes, dust, laundry, cook most of our meals, bake our bread - every time he sees me doing anything, he tells me go sit down. I thought this was because he loved me - now I am thinking he feels obligated.
I'm sorry - I just had noone to talk to - I'm really confused
This was scary to say the least - it took me a few hours to research, get scared that the symptoms match, convince myself I have enough other MS symptoms to still believe it's MS, and get my positive self back in gear!
The problem is - my dh has been nothing but sweet and loving since my definitive dx at Hopkins eight months ago. He suffers from scleroderma and I have cared for him for almost 25 years - he told me this is why he felt he had to do anything he could to help me - all the while watching me deteriorate.
This afternoon, all he did was yell at me. I thought this was because the possibility of NMO was equally as scary to him - but then he started telling me how he would like me to do more housework, more in the garden - that I need to get out and go for a walk (I can get about 25 feet with my cane before I have to stop - ? and have two wheelchairs and a walker - ?) and he doesn't want to hear about my pain or health anymore. I feel really unwanted and confused
I do everything I can here - I plant, harvest, and preserve our raised beds for our food - take care of our dogs and the chickens - do dishes, dust, laundry, cook most of our meals, bake our bread - every time he sees me doing anything, he tells me go sit down. I thought this was because he loved me - now I am thinking he feels obligated.
I'm sorry - I just had noone to talk to - I'm really confused
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