I have not been on MS world in quite some time - needed a bit of a break over - but as we all know MS does not take a break...
we moved to a new house that will accommodate a wheelchair as that time is coming ...quicker than we hoped.
MY BF of 5 years , was dx'd 1 1/2 years ago with MS - he is Type 1 diabetic /bi polar and has had 2 major back tumours removed in the past 4 years........
He said that being rx'd with MS was just the icing on the cake he has been served health wise..in a weird way he was able to handle the dx better than someone that has never had to deal with a major medical issue.
it is overwhelming at times and right now is one of them.
He is suffering depression now , and almost refuses to leave the house . He will not go the to Dr ( cancelled 3 appointments) ...he cannot take any meds for MS ( medical pot is okay ) and he feels like what is the point in going to the DR. He take a lot of medication and is on the insulin pump.
He cannot help around the house , nor with the animals ( 3 dogs) . He falls alot yet will not use a walker and even fights using a cane.
He does not eat until I come home from work ( will not eat )...however he does not stop eating from the time I come home until bedtime....he has night time incontinence off and on and zero sex drive .
He is a big guy at 6'1" and now up to about 270....I am having a harder and harder time helping him get around - helping him get up , dressed , showered etc....it getting more and more difficult - very scary !!
Myself - I dont want to be called a caregiver - I am his girlfriend , lover and confident .....I do not mind caring for him ....I am frustrated at this point in time!!!! GRRRRRRRRRRRR....
Well thats my vent here - I know I am not alone being a "caregiver" is hard in many ways ...I am glad I am my man's support and supporter but sometimes it is hard to know which way to turn ..
(sorry this turned into a big whine session )
we moved to a new house that will accommodate a wheelchair as that time is coming ...quicker than we hoped.
MY BF of 5 years , was dx'd 1 1/2 years ago with MS - he is Type 1 diabetic /bi polar and has had 2 major back tumours removed in the past 4 years........
He said that being rx'd with MS was just the icing on the cake he has been served health wise..in a weird way he was able to handle the dx better than someone that has never had to deal with a major medical issue.
it is overwhelming at times and right now is one of them.
He is suffering depression now , and almost refuses to leave the house . He will not go the to Dr ( cancelled 3 appointments) ...he cannot take any meds for MS ( medical pot is okay ) and he feels like what is the point in going to the DR. He take a lot of medication and is on the insulin pump.
He cannot help around the house , nor with the animals ( 3 dogs) . He falls alot yet will not use a walker and even fights using a cane.
He does not eat until I come home from work ( will not eat )...however he does not stop eating from the time I come home until bedtime....he has night time incontinence off and on and zero sex drive .
He is a big guy at 6'1" and now up to about 270....I am having a harder and harder time helping him get around - helping him get up , dressed , showered etc....it getting more and more difficult - very scary !!
Myself - I dont want to be called a caregiver - I am his girlfriend , lover and confident .....I do not mind caring for him ....I am frustrated at this point in time!!!! GRRRRRRRRRRRR....
Well thats my vent here - I know I am not alone being a "caregiver" is hard in many ways ...I am glad I am my man's support and supporter but sometimes it is hard to know which way to turn ..
(sorry this turned into a big whine session )
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