Thanks all for the responses.
MarySunshine: It's definitely a stages of grief thing. She has cycled through them faster than I thought, but I also expect some recycling, too. I was surprised to read suicides were highest in the first year after dx, I would have guessed later years.
Good point on the autoimmune thing, I had forgotten in the swirl of things that she also has Hashimoto's disease also (autoimmune attack on the thyroid).
It's good to hear about the good husbands out there.
I don't know that I'm at the "blessing in disguise" stage but one silver lining is we are closer in this difficulty, and I do want to hang onto that no matter what the official dx.
Hotwing / Robin: That's good to know there is a resource for kids, mine are teenagers, all we've decided for the moment is to not tell them anything yet. I am trying to think of ways to make life as normal as possible for now and in the future.
Razgo: We bought a truck and toy hauler trailer recently, but it has been more fun to use just as a camp trailer than I ever would have guessed. I had the thought that a motorhome would be a great way to enjoy the countryside with someone with mobility limits. I agree it's a good idea to grab what fun you can sick or well! BTW I had the pleasure to visit Australia many years ago, that was great fun.
MarySunshine: It's definitely a stages of grief thing. She has cycled through them faster than I thought, but I also expect some recycling, too. I was surprised to read suicides were highest in the first year after dx, I would have guessed later years.
Good point on the autoimmune thing, I had forgotten in the swirl of things that she also has Hashimoto's disease also (autoimmune attack on the thyroid).
It's good to hear about the good husbands out there.
I don't know that I'm at the "blessing in disguise" stage but one silver lining is we are closer in this difficulty, and I do want to hang onto that no matter what the official dx.
Hotwing / Robin: That's good to know there is a resource for kids, mine are teenagers, all we've decided for the moment is to not tell them anything yet. I am trying to think of ways to make life as normal as possible for now and in the future.
Razgo: We bought a truck and toy hauler trailer recently, but it has been more fun to use just as a camp trailer than I ever would have guessed. I had the thought that a motorhome would be a great way to enjoy the countryside with someone with mobility limits. I agree it's a good idea to grab what fun you can sick or well! BTW I had the pleasure to visit Australia many years ago, that was great fun.
Originally posted by MarySunshine
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