Was on here a bunch in the years following my diagnosis in 2004. Then life got in the way and frankly I’ve always been pretty anti pharma. Went on Avonex for short period of time. Copaxone for maybe a year or two but predominantly relied on yearly MRI to check for progression.
I’ve been fortunate to only have one bad relapse that left me blind in the left eye (optic neuritis) but my biggest issue has always been fatigue. Now the weakness has really started to affect me. Very hard to get around, balance is bad and I’m constant tripping over air!
I don’t work anymore.
My new Dr wants me on meds. His concern is the spinal lesions I have. One area is causing a significant narrowing of the spinal cord. He suggested Ocrevus or Lemtada but I don’t want to jump to infusions. So he suggested Mavenclad. Doesn’t seem to be much talk about it on here.
sorry for the long post, looking forward to reacquainting with the MS family.
I’ve been fortunate to only have one bad relapse that left me blind in the left eye (optic neuritis) but my biggest issue has always been fatigue. Now the weakness has really started to affect me. Very hard to get around, balance is bad and I’m constant tripping over air!
I don’t work anymore.
My new Dr wants me on meds. His concern is the spinal lesions I have. One area is causing a significant narrowing of the spinal cord. He suggested Ocrevus or Lemtada but I don’t want to jump to infusions. So he suggested Mavenclad. Doesn’t seem to be much talk about it on here.
sorry for the long post, looking forward to reacquainting with the MS family.
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