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Newly Diagnosed & Struggling

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    Newly Diagnosed & Struggling

    Hey, I'm still trying to figure out how to use this but anyway I'm 20 years old and I'm from Canada. Starting in December 2019 my entire body went pins and needles (like when your foot 'falls asleep'), it lasted for a couple months. Then half my face went completely numb. My hands used to shake really bad sometimes too. I was diagnosed with RRMS in July 2020 after 7 months of tests and different specialists. I started Tecfidera in August and have adapted fine. I don't have any symptoms anymore, they've kind of just went away over time. I guess my only real struggle is the unknown, the uncertainty, the anxiety towards my future. I feel like no one in my life understands and can relate to me in any sort of way. Hoping you guys can! xo, jordyn

    #2
    Hi Jordyn,

    Welcome to MSWorld. Glad you found us. I am truly glad your symptoms have resolved and you are doing well on your DMT.

    You will definitely find people here who fully understand your feelings. I remember my first year following diagnosis - an emotional roller coaster. Wanting to learn about MS, but at the same time, not wanting too.

    Fear is a normal reaction following a diagnosis. So please, feel free to post your thoughts and fears. Just know that while MS can be disabling, for many, it is not. But that doesn't mean our fears aren't real and something we need to come to terms with.

    Hope to see more of you! Again, welcome.

    Kathy
    DX 01/06, currently on Tysabri

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      #3
      Hello jordyn .....yes the future is uncertain but that holds true even without an MS diagnosis. Take care of yourself with good food and movement. Keep it going.
      The future depends on what you do today.- Gandhi

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        #4
        Hello jordyn ~

        Welcome!

        Originally posted by jordyn View Post
        I started Tecfidera in August and have adapted fine. I don't have any symptoms anymore, they've kind of just went away over time.
        Good for you that you are doing well on Tec, and that your symptoms have subsided!

        Originally posted by jordyn View Post
        I guess my only real struggle is the unknown, the uncertainty, the anxiety towards my future.
        Most of us try to stay in today, taking each day as it comes, one day at a time. It does take a little practice, though, but is doable over time.

        Originally posted by jordyn View Post
        II feel like no one in my life understands and can relate to me in any sort of way. Hoping you guys can!
        You've come to the right place, jordyn.

        PPMS for 22 years (dx 1998)
        ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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          #5
          Hello jordyn and welcome to MSW. I am so sorry you were diagnosed with ms. Just as Pennstater said, some become disabled some do not.
          I'm glad Tec is working for you and I wish you all the best
          God Bless Us All

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