Announcement

Collapse
No announcement yet.

Sort of new here

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • pennstater
    replied
    Hi Crazyguy.

    The amount of vitamin D3 you take should depend on how deficient you are. Did your doctor provide a dose for you and discuss when to retest?

    As for disability, if you file, you will need the support of the doctor(s) treating you for the symptoms you list as disabling. That can be doctors that treat both physical and mental symptoms/conditions. Before you file, you should have an open conversation with them to see if they support it.

    ​​​​


    ​​​

    Leave a comment:


  • Mamabug
    replied
    1.
    Originally posted by Crazyguy View Post
    So I started seeing an internist while waiting to see yet another neurologist ( it's been over a year since I've seen one so I figured why not). But the internist ordered some blood work and everything was good but my vitamin d was low. It has been in the past but Ive been taking supplements, I guess they're not working that well.
    Does your doctor have any solutions? What dosage are you taking? And what form?
    Vitamin D3 is often more easily absorbed that vitamin D or D2. Taking it with a meal can also help absorption.

    You could also try to get some daily sunshine -- even 10 minutes a day on exposed skin can help. And certain foods help-- egg yolks, fish, mushrooms.

    2.
    Originally posted by Crazyguy View Post
    it's been a while since I've updated on here but I get fatigue and weakness in my legs now. I have since COVID restrictions started. I haven';t seen a neurologist in over a year but I';m due to give it another shot at the beginning of March. He';s a UCLA doctor that';s somewhat local.
    I've noticed increased weakness or progression, too, since COVID started, due to not being able to go out to group exercise regularly. I'm trying to exercise at home. Some strength training, some indoor/in-my-house walking, etc. Probably even yoga or stretching to YouTube videos can help.

    3.
    Originally posted by Crazyguy View Post
    im looking at going on disability for my problems. Has anyone here been able to get on disability with being in limbo but having objective medical evidence of medical problems? Just thinking I might have problems getting on disability being in limbo.
    Usually, these rules apply for being approved for disability:
    • You cannot do work that you did before because of your medical condition.
    • You cannot adjust to other work because of your medical condition.
    • Your disability has lasted or is expected to last for at least one year or to result in death.
    This is a good place to have your SSDI and LTD questions answered by MSW volunteer, Attorney Jamie Hall.
    https://www.msworld.org/forum/forum/...ity-disability

    Leave a comment:


  • Crazyguy
    replied
    So I started seeing an internist while waiting to see yet another neurologist ( it’s been over a year since I’ve seen one so I figured why not). But the internist ordered some blood work and everything was good but my vitamin d was low. It has been in the past but I’ve been taking supplements, I guess they’re not working that well.

    it’s been a while since I’ve updated on here but I get fatigue and weakness in my legs now. I have since COVID restrictions started. I haven’t seen a neurologist in over a year but I’m due to give it another shot at the beginning of March. He’s a UCLA doctor that’s somewhat local.

    im looking at going on disability for my problems. Has anyone here been able to get on disability with being in limbo but having objective medical evidence of medical problems? Just thinking I might have problems getting on disability being in limbo.

    Leave a comment:


  • KoKo
    replied
    Originally posted by Crazyguy View Post
    Just an update. I realized since "my brain blew up" I've been having mental health issues like psychosis and paranoia about the people in my life. I'm on a good medication now that helps control that. I realize nobody has been lying to me and although I still think I have ms, its a hard disease to diagnose sometimes.
    That's great to know! Wishing you continued success with the medication.

    Thank you for the update.



    Leave a comment:


  • Mamabug
    replied
    Originally posted by Crazyguy View Post
    Just an update. I realized since "my brain blew up" I've been having mental health issues like psychosis and paranoia about the people in my life. I'm on a good medication now that helps control that. I realize nobody has been lying to me and although I still think I have ms, its a hard disease to diagnose sometimes.
    Oh! I'm so glad you've found a medication that works. During the first 10 years or so of my MS (2002 - ?), mental health symptoms were really common for me (mostly mania, occasional other stuff too). After I switched to Copaxone, that seemed to be a much better fit for me and kept that under control. But, I remember feeling so out of control during those years.

    Leave a comment:


  • Crazyguy
    replied
    Just an update. I realized since "my brain blew up" I've been having mental health issues like psychosis and paranoia about the people in my life. I'm on a good medication now that helps control that. I realize nobody has been lying to me and although I still think I have ms, its a hard disease to diagnose sometimes.

    Leave a comment:


  • REG53
    replied
    Hello Crazyguy, I hope the PT helps with the weakness & pain in your legs. I also suffer with weakness and pain in my legs. I used to walk on the treadmill and loved it but not any more so now I ride a stationary bicycle. Getting your anxiety and fatigue under control is wonderful.

    Wishing you all the best in PT.

    Leave a comment:


  • KoKo
    replied
    Hi Crazyguy

    Originally posted by Crazyguy View Post
    Iíve been having weakness and pain in my legs for about 6 months now. My ability to stand for long periods of time and walk far distances has diminished over time. I can only walk a little over a 1/4 mile on the treadmill now before my legs start to buckle and itís too painful to continue. I went to my pcp and heís referring me to physical therapy which I start on Monday.
    Good luck with your physical therapy. Hope you have improvements with your walking, as well as relief from the pain.

    Originally posted by Crazyguy View Post
    My anxiety is under control and my fatigue is being combated by 200 mg of provigil and a little bit of coffee every day. I was having psychosis problems earlier in the year and we switched meds and I feel much better now after I got used to them.
    Glad that your anxiety and fatigue are being treated, and that you're feeling better.

    Originally posted by Crazyguy View Post
    im taking a little time off of work right now because my job requires me to stand all day. I just canít do it anymore. I do worry about not being able to do my job anymore and how Iíll be able to support my family. Weíll see what happens. I hope I get some answers.
    Try to remain hopeful, and take each day as it comes.

    Let us know how your PT goes.

    Take Care

    Leave a comment:


  • Crazyguy
    replied
    Itís been a while since Iíve posted my news here so just to give everyone an update.

    Iíve been having weakness and pain in my legs for about 6 months now. My ability to stand for long periods of time and walk far distances has diminished over time. I can only walk a little over a 1/4 mile on the treadmill now before my legs start to buckle and itís too painful to continue. I went to my pcp and heís referring me to physical therapy which I start on Monday. My anxiety is under control and my fatigue is being combated by 200 mg of provigil and a little bit of coffee every day. I was having psychosis problems earlier in the year and we switched meds and I feel much better now after I got used to them.

    im taking a little time off of work right now because my job requires me to stand all day. I just canít do it anymore. I do worry about not being able to do my job anymore and how Iíll be able to support my family. Weíll see what happens. I hope I get some answers.

    Leave a comment:


  • Crazyguy
    replied
    Originally posted by SNOOPY View Post
    Hi Crazyguy.

    I have been thinking of you lately and how things are going. Thank you for updating

    Itís great that you see a Psychologist. Have you considered seeing Psychiatrist? A Psychiatrist can prescribe medications that can be helpful for your anxiety.

    Anxiety can cause many physical symptoms. If your symptoms are a physical manifestation of your anxiety you could see a decrease of your symptoms. Treating your anxiety could help you and your Drs. in determining if symptoms are a physical manifestation of anxiety or not.

    Take care


    Iíve been seeing a psychiatrist since I was 18 for my psychotic disorder. I have been taking Ativan for my anxiety. I normally donít have many symptoms except cognitive ones are daily. And when it rains my muscles in my arm and leg cramp up. Sometimes I get fatigue that lasts for a couple days but thatís about it.

    I asked my psychiatrist a while back if he felt I had somatoform disorder and he told me I definitely donít have that. Iím certain that next year Iíll get another opportunity to try. I will let everyone know if anything happens.

    Leave a comment:


  • SNOOPY
    replied
    Hi Crazyguy.

    I have been thinking of you lately and how things are going. Thank you for updating

    Itís great that you see a Psychologist. Have you considered seeing Psychiatrist? A Psychiatrist can prescribe medications that can be helpful for your anxiety.

    Anxiety can cause many physical symptoms. If your symptoms are a physical manifestation of your anxiety you could see a decrease of your symptoms. Treating your anxiety could help you and your Drs. in determining if symptoms are a physical manifestation of anxiety or not.

    Take care

    Leave a comment:


  • KoKo
    replied
    Originally posted by Crazyguy View Post
    Iíve been hesitant to share what has been going on with me out of embarrassment. But I suppose Iím ready now. I went to UCLA and the neurologist there told me my current neurologist thinks my problems are psychological. She told me she would look over my records and get back to me. I had some difficulty with this and my psychologist told me to take a break from seeking a diagnosis for a while. The UCLA doctor concurred with my neurologist.

    Iíve suspected this whole time my doctors have been lying to me to protect me from psychological harm. My anxiety for the past 3 years has been so debilitating that it has affected everything in my life. But I noticed that with that last round of what I would consider lies. I felt a sense of relief. I still have my moments but Iím much happier and less anxious. I know if I can keep up my mood and positive attitude my doctors will eventually diagnose me. Iím not currently seeing a neurologist but weíll see what happens. I still have symptoms and I deal with them. Weíll see what the next year brings. I donít think Iíll ever be the same but I think I can live my life now.
    Hello Crazyguy ~

    Thank you for sharing the update on your neuro visit, even though it was difficult for you.

    You're doing the right thing by taking care of your anxiety and attitude.

    Maybe taking a break from seeking a diagnosis for awhile, as suggested by your psychologist, will be beneficial.

    Let's hope your symptoms lessen or subside. Time will tell.

    Take Care

    Leave a comment:


  • Mamabug
    replied
    I don't have any advice for you.

    But thanks for keeping us updated.

    Leave a comment:


  • Crazyguy
    replied
    Iíve been hesitant to share what has been going on with me out of embarrassment. But I suppose Iím ready now. I went to UCLA and the neurologist there told me my current neurologist thinks my problems are psychological. She told me she would look over my records and get back to me. I had some difficulty with this and my psychologist told me to take a break from seeking a diagnosis for a while. The UCLA doctor concurred with my neurologist.

    Iíve suspected this whole time my doctors have been lying to me to protect me from psychological harm. My anxiety for the past 3 years has been so debilitating that it has affected everything in my life. But I noticed that with that last round of what I would consider lies. I felt a sense of relief. I still have my moments but Iím much happier and less anxious. I know if I can keep up my mood and positive attitude my doctors will eventually diagnose me. Iím not currently seeing a neurologist but weíll see what happens. I still have symptoms and I deal with them. Weíll see what the next year brings. I donít think Iíll ever be the same but I think I can live my life now.

    Leave a comment:


  • Mamabug
    replied
    I'm glad that your current employer is understanding.

    I hope you get some answers at your October 24 appointment.

    Leave a comment:

Working...
X