Hello World,
Hoping to connect with sufferers out there, because I feel like my doctors are trying to push me into some sort of hypochondriac corner. I've had health issues for 10 years (right hand nerve issues, incontinence, IBS), but the real change was about 4 months ago. I went from biking to work 3x a week, lifting weights and kickboxing 2-3x per week, and long distance running - to - nothing. To the point that I couldn't walk the length of my house without thinking I was going to pass out. I spent 5 days in the hospital and was discharged with a mention of chronic fatigue syndrome and "to get more exercise." Right. The exercise I'm supposed to get when I can't walk more than 20 feet? BTW, I can walk maybe 50 feet now....if I go any further, I have to sleep for 14 hours, deal with a whole lot of pain, and expect the entire next day to be horrible.
Since then, I was negative for definitive MS, but positive in respect to the symptoms. I'm sort of diagnosed as having RMS. I don't care about a diagnosis - I want to feel better. I am miserable. I can't leave my house and run errands without ending up in tears in pain and fatigue - I still can't walk much more than 50 feet without losing my balance and trying to stay conscious. My vision blurs and I feel like I'm going to fall down, pass out, or both....and I just keep my feet moving, to my amazement, and I can make it to where I can lean on something or sit and recover. Now I am dealing with back pain that takes my full concentration and often full on tears to get through - WHILE trying to keep my job. I live in pain all day every day now. I can barely get around, let alone do the things my family needs me to do.
Do I sound familiar at all? Have any of you been through this and found medicines that will help you? Please tell your stories, tell me what you know - I just want to stop the pain, the fatigue. I want to stop being a burden on my family and get back to being the hard worker and active athlete I'm used to being.
Hoping to connect with sufferers out there, because I feel like my doctors are trying to push me into some sort of hypochondriac corner. I've had health issues for 10 years (right hand nerve issues, incontinence, IBS), but the real change was about 4 months ago. I went from biking to work 3x a week, lifting weights and kickboxing 2-3x per week, and long distance running - to - nothing. To the point that I couldn't walk the length of my house without thinking I was going to pass out. I spent 5 days in the hospital and was discharged with a mention of chronic fatigue syndrome and "to get more exercise." Right. The exercise I'm supposed to get when I can't walk more than 20 feet? BTW, I can walk maybe 50 feet now....if I go any further, I have to sleep for 14 hours, deal with a whole lot of pain, and expect the entire next day to be horrible.
Since then, I was negative for definitive MS, but positive in respect to the symptoms. I'm sort of diagnosed as having RMS. I don't care about a diagnosis - I want to feel better. I am miserable. I can't leave my house and run errands without ending up in tears in pain and fatigue - I still can't walk much more than 50 feet without losing my balance and trying to stay conscious. My vision blurs and I feel like I'm going to fall down, pass out, or both....and I just keep my feet moving, to my amazement, and I can make it to where I can lean on something or sit and recover. Now I am dealing with back pain that takes my full concentration and often full on tears to get through - WHILE trying to keep my job. I live in pain all day every day now. I can barely get around, let alone do the things my family needs me to do.
Do I sound familiar at all? Have any of you been through this and found medicines that will help you? Please tell your stories, tell me what you know - I just want to stop the pain, the fatigue. I want to stop being a burden on my family and get back to being the hard worker and active athlete I'm used to being.
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