Hi all, I just want to introduce myself! I went to the doctor a month ago with some difficulties walking that have been going on for years and difficulty with a tremor in my hand (also cognitive issues for a few years). I had an MRI that came back with "extensive confluent regions of FLAIR hyperintensity (without contrast) and periatrial regions T1 hypointense." The neurologist said she is fairly confident it is an MS diagnosis. I went for a spinal MRI which had no lesions. Then I had a head CT to look at vessels and rule out CNS vasculitis, also negative. I've had blood tests for all kinds of things, which mostly came back negative except I have severe vitamin D deficiency and could use more B12 as well. Last wednesday I had a lumbar puncture which I don't have results on yet, but that test has really laid me up and I've spent much of the last 5 days in bed (only a mild headache but a fair amount of dizziness).
So I am still awaiting final diagnosis, although I know it takes time and I have been on something of a fast track. I am also feeling lonely in part because not a lot of people know (a some friends and family) but I've also been laid up in bed! And I am concerned about prognosis as I have never had an attack like one sees in relapsing-remitting, just gradual increase in symptoms.
Glad to meet you all!
So I am still awaiting final diagnosis, although I know it takes time and I have been on something of a fast track. I am also feeling lonely in part because not a lot of people know (a some friends and family) but I've also been laid up in bed! And I am concerned about prognosis as I have never had an attack like one sees in relapsing-remitting, just gradual increase in symptoms.
Glad to meet you all!
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