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  • jreagan70
    replied
    Thank you, Grace, for clearing that up.

    And thanks for illustrating the point I made under Wendy/whajj's thread in the Tell Us About Yourself forum about why it isn't a good idea to try to discuss NMO on an MS forum. The information is most often speculative and wrong. It's only by chance that someone who is knowledgeable about NMO comes onto an MS forum to set people straight on the facts.

    So for anything to do with NMO, it's best to go to the Guthy-Jackson website at www.guthyjacksonfoundation.org and to join the patient community at http://spectrum.guthyjacksonfoundation.org/.

    Leave a comment:


  • Grace53a
    replied
    Actually hunterd and whajj, unlike MS, NMO does not have a progressive phase with the exception of very rare cases, rather all damage occurs during the acute neuro inflammatory event. The purpose of the medication is to hopefully prevent attacks. There is a tremendous amount of research being done now in the area of NMO, thanks to the formation of the Guthy-Jackson Charitable Foundation for NMO Spectrum Disorders Research. They have put in excess of $39,000,000 into the NMO research effort at this point. There are also other promising clinical trials that have either just started or are still recruiting. For current and accurate NMO information, visit the Foundation's website.

    Grace (NMO+ since 2005)

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  • hunterd
    replied
    Originally posted by whajj View Post
    I'll ask my doc. She might have mentioned it but it would seem to me to do what the others do in a way. That is, to slow down the progression of I'm reading it right.


    We must be reading it the same way because that is what I thought also.

    Leave a comment:


  • whajj
    replied
    Originally posted by hunterd View Post
    something new in a trial, http://www.opexatherapeutics.com/OPX...n/default.aspx

    I just saw this in my email and thought I would pass it along.
    I'll ask my doc. She might have mentioned it but it would seem to me to do what the others do in a way. That is, to slow down the progression of I'm reading it right.

    Leave a comment:


  • hunterd
    started a topic new treatment?

    new treatment?

    something new in a trial, http://www.opexatherapeutics.com/OPX...n/default.aspx

    I just saw this in my email and thought I would pass it along.
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