Getting Iv steroids for on

[wookieland]

I'm experiencing eye pain and blurred vision in one eye so my dr is having me do the home infusion of Iv steroids for 3 days. I've had Iv steroids a few years ago but not since. I hate having to medicate besides my usual avonex. Any tips advice on taking steroids? Some say you get insomnia some say you gain weight which I think must just be water weight and some say you crash afterwards. Thanks so much. Having distorted vision and eye pain Is scary

[KitOP]

Just like MS, everyone is different. You may have insomnia, you may get the munchies. I had a neuro tell me one time, watch eating too many carbs during t his time.

Sometimes when you are getting the infusion, you may notice a metal taste in your mouth. Some lifesavers may help there.

Hope this helps a little. I've had IVSM for ON too. Good luck and may it work!

[moose]

I get the IV every 4 weeks, just one days worth. I swear by it. They took me off it because it was messing with my blood sugar, but by week 6 I was real bad and falling down steady. I went right back on it. I think without it I'd be in a wheelchair within a few months time.

[malaholic]

Hi Wookieland -

I think the experience is a bit different for everyone. For me, I was so fatigued that I welcomed the extra alertness, and I didn't have any insomnia problems. The only real side effects I noticed were flushing in my face & chest, and a weird metallic taste in my mouth.

For me the treatment was well worth those minor side effects; by the end of the 2nd dose my dizziness was noticeably improved, and within about a week of treatment my double vision was more or less back to normal.

The energy/alertness did wear off but for me it was gradual; it didn't seem to be a "crash" (I only had 3 days). I also lost weight instead of gaining; but at the same time I have switched to a healthier diet overall so that is likely why.

I hope the treatment goes (has gone?) really well for you!

[JennetteD]

I'm experiencing eye pain and blurred vision in one eye so my dr is having me do the home infusion of Iv steroids for 3 days. I've had Iv steroids a few years ago but not since. I hate having to medicate besides my usual avonex. Any tips advice on taking steroids? Some say you get insomnia some say you gain weight which I think must just be water weight and some say you crash afterwards. Thanks so much. Having distorted vision and eye pain Is scary

I'm sorry but I don't know. I just wanted to let you know your not alone and someone out here cares for you

Lol, I am a bucket of emotions these days. Might be a gift from God as I've usually been the non-touchy feely kind. Now I'm reaching out like a maniac. Just so dog-on lonely. Seems like everyone disappeared (although probably just me feeling sorry for myself)