Hi everyone. I'm here as the husband of a newly diagnosed MS sufferer.
I'm learning as I go as we both are, but there are some things that doctors won't tell you or simply won't accept responsibility for so I have to ask people for anecdotal evidence, and hopefully you guys can be a source for me.
I could write a novel, but I'll get to the point. My wife was given two days of 1000 mg Solu-Medrol IV in the hospital and then 1250 oral at home to help with calming down the lesion she had which started this off.
I know all docs have different protocols, but she was not titrated down after the 3 day dose with anything.
She was actually feeling a lot better BEFORE her diagnostic spinal tap and eventual steroid regimen in the hospital and now she has the sensation that her head is huge and is generally feeling like crap.
Can any of you out there share a similar experience with a high-dose steroid regimen for MS? Other folks I've asked have said yes,the steroids made them feel awful and that a couple of weeks was needed to get back to normal. She is despondent and I need to help her any way I can. Thank you.
I'm learning as I go as we both are, but there are some things that doctors won't tell you or simply won't accept responsibility for so I have to ask people for anecdotal evidence, and hopefully you guys can be a source for me.
I could write a novel, but I'll get to the point. My wife was given two days of 1000 mg Solu-Medrol IV in the hospital and then 1250 oral at home to help with calming down the lesion she had which started this off.
I know all docs have different protocols, but she was not titrated down after the 3 day dose with anything.
She was actually feeling a lot better BEFORE her diagnostic spinal tap and eventual steroid regimen in the hospital and now she has the sensation that her head is huge and is generally feeling like crap.
Can any of you out there share a similar experience with a high-dose steroid regimen for MS? Other folks I've asked have said yes,the steroids made them feel awful and that a couple of weeks was needed to get back to normal. She is despondent and I need to help her any way I can. Thank you.
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