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Time for a new pump!

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    Time for a new pump!

    Hi all!

    I have been living with MS for a long time. ON in 1985. Diagnosis in 1990. Like many of you spasticity is a problem.
    In 2003 I got my first baclofen pump which has helped.

    Now my 2nd pump is over 6 years old and will need to be replaced sometime soon. I'm not really sure why I'm posting except I have a different doctor who handles my pump refills. He is also a neurosurgeon so he'll be doing the surgery.

    I guess I'm just nervous because I'm older (58) than I was before and also will be having the surgery in a different hospital and by a different doctor than my first two pumps. Guess I'm just looking for support.

    Thanks! Ei

    #2
    1 yr old "pumpster" here and 57. If you have confidence in your new team, you should be good to go. Good luck and God speed! (and loose limbs).

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      #3
      Thanks Brad.

      I'm not too worried since I didn't have any problems with my other pump surgeries. I just don't like being in the hospital.
      I'm pretty self sufficient but they won't even let me go to the bathroom by myself!

      Thanks again! Ei

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        #4
        I agree. Being in a hospital is no fun. They also loaded me up with antibiotics: extra, supreme no fun!

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          #5
          I had my pump replaced last year. It barely counts as a hospital visit when they send you home as soon as you open your eyes. I was in at 7:00, out at noon. Half of that was filling out paperwork and waiting. Iím 67, so being older did not seem to matter.

          I hope your replacement goes well.

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            #6
            Wow kmallory! That's great they got you in and out so quickly. I had all three of my surgeries in a hospital. It was outpatient but I had to spend the night. Then they released me in the morning. It was a real pain.

            Thanks for your response it sounds like you have a good attitude!

            Hey Brad I came across an old thread of yours. You failed your test dose? Does the pump work for you now?

            Mine works ok. Keeps me from being stiff as a board. Also cuts out the annoying spasms, but it's not perfect.

            Thanks for your responses.
            Ei

            Comment


              #7
              Thanks for your response kmallory!

              I forgot about people saying they were in and out so quickly. My surgeries were considered outpatient too but I had to spend the night. It's a real pain. I'm glad you didn't have any problems.

              Hey Brad. I came across an old thread. You failed your test dose. Does the pump work for you now?

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                #8
                Sorry about the similar posts I didn't think the first went through. Take care.

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                  #9
                  Originally posted by Leenyi View Post
                  T

                  Hey Brad. I came across an old thread. You failed your test dose. Does the pump work for you now?

                  First test dose at 50 didn't do a thing. Then, a month later, they tried 100, and it worked. I had a pump installed in April '17.

                  Comment


                    #10
                    Baclofen pump replacement

                    Lennyi,
                    I am 69 and will be going in for my 3rd pump in a few months. I have never thought about the surgery since I have always handled them very well. I have been through quite a few surgeries since 1984. I have had lumbar spinal fusions with rods and screws, sacral stimulator in and out, colostomy and a few more.

                    I have no Baclofenin my pump now. The main medication is Prialt (Ziconotide)which replaces Morphine and Baclofen. For me it works better than both medications.
                    Rich

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