Problems with feet ????

[cali1892]

Oh yes! The bottoms of my feet, mainly the right have what I call a numby feeling. Kinda almost numb, but not. Burning, weird type feeling when you rub it. It's hard to describe.

My right palm and hand have pretty close to the same feeling. And the tip of my right thumb is numb. I know does not make sense.

[Brianna495]

I have the same thing with my feet bothering me. On the bottom of my feet I feel nothing at all or like I am walking on something or something is stuck between my toes/under my feet. The tops however seem to be hypersensitive where if even the sheets touch the tops of them they hurt like hell or burn. It's very interesting wearing socks and shoes and having sheets on you...

[Jane30]

When my MS flares up, and it has in the past month, I get terrible neuropathy in both legs. We treated my flare with solumedrol for 5 days and I seemed fine. Then weeks later the neuropathy returned but just in my left leg. I can't even sit up or walk without crying.

Neuro is trying everything under the sun. Neurotin, Lyrica, Cymbalta, etc. Nothing is working. Neuro doc said he's never seen neuropathy affect someone so painfully. I've been to the hospital so many times for pain management. Physical therapy is coming today and is going to try anodyne therapy.

I'm trying to find a pain doctor. A few years back, I had a steroid epidural. This helped tremendously with the pain and it got me feeling back to normal. I'm just hoping I get to see a pain specialist in time before I go bonkers. I hope everyone who is experiencing neuropathy isn't having it as painful as this. And I hope that everyone is getting some type of relief.

[MarkLavelle]

A few years back, I had a steroid epidural. This helped tremendously with the pain and it got me feeling back to normal.

If the epidural helped the same kind of pain, then that pain is most likely due to some kind of musculoskeletal problem with your spine, not MS.

A pain specialist may help you feel less pain, but they won't help you get rid of the cause. You should really see a physiatrist or ortho doc to deal with the root cause.

[Jane30]

Unfortunately, the pain is from my MS. Recent MRI is showing an active lesion on my C4, meaning the lesion is on the cervical spinal cord (for the newbies). So I'm having a flare. And when I have a flare, it seems to always attack my legs and I get neuropathic pain and weakness. The shot has worked in the past. It may not work for everyone.

[Sissy]

Jane30 I have to agree with you! My neuropathy pain is horrible! Steroid epidural helped but I had to do more and more often.I had a thoracic epidural to help my MS Hug. These were before I was DX'd.

No one knew what the HUG was in '05 my family Dr sent me home to die. He said my diaphragm and stomach were dying. The thoracic epidural cured me...LOL...in 2hrs! I went 4 more years trying to get help. I fired my Dr in June '09 found new Dr and was DX'd in Aug '09.

[Brianna495]

Jane30 I have to agree with you! My neuropathy pain is horrible! Steroid epidural helped but I had to do more and more often.I had a thoracic epidural to help my MS Hug. These were before I was DX'd.

No one knew what the HUG was in '05 my family Dr sent me home to die. He said my diaphragm and stomach were dying. The thoracic epidural cured me...LOL...in 2hrs! I went 4 more years trying to get help. I fired my Dr in June '09 found new Dr and was DX'd in Aug '09.

I had the hug too around '07 for the first time and they had no idea what it was then either. It was all in my head, of course.

[Tammy-Rose]

foot pain

My pain starts when i have been standing too long or on my feet too long. Which is not long at all really. But they go ice cold and hurt and ache bad. And i start to stagger on my feet also. I have wondered if the ms is the cause. I have many lesions on my spine and brain. So wondered if the ones on my spine are effecting my legs? Don't know any input would be great.

[Kippy]

My feet have really bad neuropathy, and I feel as if I'm walking on 6 inches of pins and needles, constantly, for years now. This causes me to feel as if my feet are rounded on the bottoms, so it makes my balance even worse. I take 100mg. Lyrica twice a day and Amitriptyline at night. They take the edge off, a bit, but it never goes away. Time to ask my doc to find some other meds.

[Jane30]

Turns out MarkLavelle was right about what he commented. My apologies, Mark. A recent lumbar MRI showed a 2mm bulge in my L4-L5. Still got my nerve block to stop the neuropathy.

MyGirl, I hope you're getting some relief, sweetie. That goes for all of you too.

[MarkLavelle]

No need to apologize! It just happens to be an area I have a lot of experience with...

[TamaraL]

Hi, Just wanted to ask if anyone has trouble with their feet ? Burning, pain, feels like walking on rocks & glass. Don't know if this is MS, meds or something else.
Thanks for listening. Always keep smiling

I'm not sure if it's related, but I have itchy feet and they tingle a lot. It always borders on that feeling like my feet are falling asleep, but it's worse than that - sometimes I'm afraid to stand up to try to walk!

[newbie but goodie]

MyGirl- Yes! I have numbness, tingling, and sometimes a burning-type sensation. I also don't have good temperature sensation. Like, if I stick my feet in a pool I will think it feels good to go in. Once I get about up to my knees I realize it is freezing cold! Shoes are VERY hard to wear and even the wrong socks will cause me a fair amount of discomfort. Flip flops are the most comfortable thing for me to wear... if only I could walk in them!

[MyGirlsMom]

Check your B12

MyGirl, I think it would be worth it to have your B12 checked at your next doctor visit. However, if you do, be sure to let the doc know exactly how much you have been supplementing and for how long.

I was taking a nasal spray of B12 for two years or so. During that time the bottoms of my feet and the palms of my hands were getting worse with increasing pain and burning/tingling feeling. It freaked me out as it was so uncomfortble. My PCP and I both attributed it to MS. However, when I changed from the nasal delivery of B12 to injections, I could immediately tell the difference! Once I started injections, my word finding issue also improved and my hair stopped falling out and got thicker again. I couldn't believe it. My PCP didn't seem to believe me, but my neuro was totally all over it and in fact thought I should inject B12 more often than every month! (Again, I wasn't crazy!)

My issue is pernicious anemia and the malabsorbtion of B12, but supplements via injections or sublingual make it an easy fix...in the scheme of things.

Please don't just assume its MS!

[kebsa]

i ahve mild type 2 diabetes, chronic low back issues (nerve impingement) and have had decreased sensation in my left leg (in am a right leg amputee). i started with just mild decreased sensation in parts of my foot and lower leg. in very recent times i have had a significant change though and i have wondered if i have had a bit of a flare.

i had left hand and arm problems that had occured before but then eased when the flare passed- this was about 6 weeks back and i had some sensations of UTI, so i got tested, changed my catheter and had some antibiotics and i did feel less fatigueed, my arm improved a bit but i also noted that i was struggling to use my left leg more than usual. normally i can stand and pivot transfer relatovely easily as long as i am not trying to get up from a low seat but now i am struggling a bit and even once i i up then i have trouble pivoting around.

then i started to note that at night the sole of my foot seemed to itch incredibly but no pain, then during the day i started having pain in the sole of my foot, especially the heel and midfoot but only when i ahve my foot flat on the ground but this is just with the weight of my leg on it as i am wheelchair dependant!

my leg does swell and i am sure that cannot help and i know that diabetes can be an issue with vascular and nerve changes but my diabetes is well controlled and ultrsounds say my circulation is ok but the pain in the sole of my foot gets so severe i cannot stand to have it touching the ground!

i have seen my doctor and he is checking blood tests etc and i am going to an ms physio/ot clinic so they can perhaps help me with my transfers and help assess why that leg seems so much weaker at present. i already take lyrica and amytriptilline for phantom limb pain and neuropathic back pain, nerve impingement -but this pain in the sole of my foot and the leg weakenss is really threatening my ability to do independent transfers. i do not want to ge to the point where its lifter tranfers!



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