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    sucking tongue?

    i've started sucking my tongue or pressing it against my teeth. my tongue will show impressions! it can get pretty sore. i catch myself doing this all the time now. i asked my neuro about it b/c all i've read online was about numb/tingly/burning tongues. my neuro basically said that it's a muscle so...

    it's not something my neuro was familiar w/ so i'm wondering...i can't be the only person that this happens to right?! i take baclofen (already) so i can't tell if it helps or not.
    MS dx's 2000
    Tysabrian

    fate is not just who's cooking smells good, but which way the wind blows

    #2
    Hello allHailye2,
    I haven't suck my tongue but at times I rub my tongue on the back of my bottom teeth. It makes me crazy. I try not to do it but before I know it, I'm doing it again. It can last for days.
    Chewing gum helps. It has been a while since the last time it happened.
    God Bless Us All

    Comment


      #3
      Originally posted by allHailye2 View Post
      i've started sucking my tongue or pressing it against my teeth. my tongue will show impressions! it can get pretty sore. i catch myself doing this all the time now. i asked my neuro about it b/c all i've read online was about numb/tingly/burning tongues. my neuro basically said that it's a muscle so...

      it's not something my neuro was familiar w/ so i'm wondering...i can't be the only person that this happens to right?! i take baclofen (already) so i can't tell if it helps or not.
      Hi allHailye ~

      The main problem with my tongue is when it decides to move between my teeth while chewing food, and I bite it.

      Take Care
      PPMS for 23 years (dx 1998)
      ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

      Comment


        #4
        New symptoms can be worrying. It's not a symptom I've experienced. I hope it goes away for you.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

        Comment


          #5
          The left side of my tongue has been a problem from the time I was diagnosed till today. Only on my left side (it's like somebody drew a line down the middle of my tongue, and only the left side experiences symptoms.)

          The interesting part is the symptoms are different from one week to the next. Sometimes there's nothing that would catch my attention unless I thought about it, and sometimes I can't help but
          deal with it all day long. So the symptoms wax and wane and since I know that, I can cope with it.

          The pressing of the tongue against the teeth is not uncommon, sometimes I'll do it so much in my sleep I'll have little blisters on the part of my tongue that was pressing on my tongue. Other times
          I'll have the numb tongue, that usually include the palate too. Other times it's a pinch feeling in one part of my tongue, and then there's the quivering feeling. Burning is a frequent visitor.

          Now the good news. There are coping mechanisms and also some medications help.

          Coping mechanisms: a piece of hard candy, or sugar-free lifesavers help keep my mind
          off my tongue (not sure why it works but it does), sucking on ice does the same thing. It
          never hurts in my sleep, sometimes it's hard to get to sleep, but once I'm there, I sleep fine.

          Warm tea or coffee helps for the time I'm drinking it. Sometimes I put a toothpick or short piece of plastic across my tongue and sticking out of my mouth at either side, and hold it there ...it keeps the tongue from quivering. My husband makes my little plastic bits out of weed eater cord,and then blunts the end with a lighter....these work well for me, but
          others find a tooth pick good. I think a straw would do the same thing. This came about by reading an article about dystonia and the type of dystonia that addresses your mouth....I hit all the symptoms, so I figured I'd give them a chance and if it worked for that maybe it would work for me.

          Last is medication, and I've found a couple super effective.
          At first I tried Lorazepam .25 Mg. and it seemed to do the trick, but after a couple of years the pain had progressed.

          I had an allergic reaction to Tegretol and Neurontin early on in the cycle, and had body rash from each...but that was 15 years before , so I talked my Neuro into me trying Neurontin and see what happened. It worked at 300 mg 3x a day. When I get a bad bout of symptoms, I'll go 600 mg (per doctor's approval) and after couple rounds of that and pain is subsiding.


          Things that make it worse: talking too much, or eating something that takes too much chewing. I either take a piece of meat cut into tiny pieces, or use ground meat broken into bits while cooking (like you'd do for tacos) or mostly I have fish for protein. We always have a freezer full of fish (great advantage to living in FL) Steamed fish or fried in peanut oil delivers a fish piece that can be easily made into small bites.

          I did see a specialist neuro that my neuro sent me to. He does the test with the needle stuck into the muscle and he said I have lots of atrophy in the left side of my tongue ( my symptoms for the most part have been left sided.) With my tongue I can't stick it out. It points to the right corner of my mouth. My left side has no gag reflex. Sometimes feels like someone is pinching a place in my tongue and pulling it down it down. Just weird, weird sensations...definitely something is not normal .

          Well, sorry for the sordid tale, but you're not alone, and more times that not, if you pull up old threads on tongues, most people have it and it goes away quickly.

          Comment


            #6
            Originally posted by allHailye2 View Post
            i've started sucking my tongue or pressing it against my teeth. my tongue will show impressions! it can get pretty sore. i catch myself doing this all the time now. i asked my neuro about it b/c all i've read online was about numb/tingly/burning tongues. my neuro basically said that it's a muscle so...

            it's not something my neuro was familiar w/ so i'm wondering...i can't be the only person that this happens to right?! i take baclofen (already) so i can't tell if it helps or not.
            I know this is a couple years old, but this is exactly what I am going through right now. I don't see my neuro for a couple weeks, but I hope she has the answer when I see her. How were you able to overcome this problem?

            Comment

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