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    When did your relapse peak

    Hi all. Just curious how quickly or slowly your relapses happend. Was it a sudden relapses or did the symptoms come in gradually over weeks?

    #2
    Originally posted by Siyman View Post
    Hi all. Just curious how quickly or slowly your relapses happend. Was it a sudden relapses or did the symptoms come in gradually over weeks?
    Siyman

    I want to welcome you to our MSWorld website, and hopefully those members with relapses will share their experiences.

    My experience, dx'd with progressive MS, has been that of continuous gradual progression, with occasional plateaus.

    Take Care
    PPMS for 22 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #3
      I didn't realize it at the time but from initial symptom (fatigue) to the peak (laying in hospital bed paralyzed) was about 6 months worth of what's going on. IIRC
      The future depends on what you do today.- Gandhi

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        #4
        Hi Siyman and welcome to MSWorld

        Just wondering if you are diagnosed with MS or going through the diagnostic process, if you care to share.

        This disease is very individualized and each of us can experience them differently, even from one exacerbation (relapse, attack, flare-up) to next.

        My first exacerbation (the one which got me diagnosed) came on very quickly, literally immediately, and it kept giving, symptom wise, day by day.
        Diagnosed 1984
        “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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          #5
          Hs

          Thanks for the replies guys.im not diagnosed.

          My journey has been a tricky one. I started with ON when I was 19 and since then had lots of attacks or that's what I call them. My last one I got stressed which usually triggers them. And woke up and my right arm was weak. Lifting a coffee mug was heavy.

          They usually clear up after months to many weaks.ive had full blood works done seen 3 neurologists had 2 MRIs 6 years apart and they came back clear. But what ever I have is so much like ms.

          Fast forward 2 weeks ago I got myself stressed again. And my right arm started getting weaker and weaker and fatigue symptoms have spread from my right arm to my whole body in about 2 to 3 weeks time. I just though with ms symptoms just come on suddenly and are bad straight away.

          [** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
          Last edited by Mamabug; 07-27-2019, 10:37 AM. Reason: Post broken into paragraphs

          Comment


            #6
            Hi Siyman.

            If you have found stress to be a trigger for whatever is going on, have you tried things to reduce your stress such as meditation, breathing exercises, music, taking a walk/exercise, occupying your mind on things you enjoy and is calming for you, etc.

            Working with a Psychotherapist and doing Cognitive Behavioral Therapy(CBT) and learning new coping skills might help reduce your stress levels and might decrease the symptoms you experience during those times. Just some thoughts...for what it's worth ~ 2 cents if even that

            Have any of the Neurologist's offered any possibilities? Has the Neurological exam/evaluation shown any deficits or do you even know?

            You had ON when you were 19, do you mind letting us know how many years ago that was? For some, a diagnosis of MS or something else can take a long time. Your Drs. are looking for signs (positive testing, exam) to indicate what might be causing your symptoms. My sister had ON and received a diagnosis of MS 12 years later.
            Diagnosed 1984
            “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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              #7
              I haven't tried anything to reduce stress but I definitely should. It's a Vicious circle beacuse I then get stressed about the symptoms. I've had attacks that effect the same area but my last couple of been more random. This current one has caused stiffness as well feel like tin man lol. But seems to be getting worse everyday. So I got on when I was 19 and have at least 1 or 2 attacks year.

              I'm now 30 so over 11 years. But if it was ms can't understand why I have clear mri. I haven't ever had a lumbar puncture. The neurologyist said they was happy to see me in the future. And one offered to put me on touch with a me nurse ?

              Comment


                #8
                Originally posted by Siyman View Post
                ive had full blood works done seen 3 neurologists had 2 MRIs 6 years apart and they came back clear. But what ever I have is so much like ms.
                Siyman ~

                How long ago since you've been seen by a neurologist, and had the MRI done?

                Did you have a cervical cord MRI also?

                Sorry for the questions, but trying to get a picture of where you're at, in regard to the amount of time that has elapsed since your last check-up.

                Thanks!
                PPMS for 22 years (dx 1998)
                ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                Comment


                  #9
                  I had a brain and spinal MRI on both occasions. My first was around 21 to and second was around 28 yo

                  Comment


                    #10
                    Originally posted by Siyman View Post
                    I had a brain and spinal MRI on both occasions. My first was around 21 to and second was around 28 yo
                    Thank you, Siyman.

                    I wonder if a neurological exam (since it's been a couple of years) would help with some of your concerns.

                    In my non-professional opinion, I would think that the exam would show some objective signs, if there is indeed an ongoing neurological problem.

                    What do you think?

                    Take Care
                    PPMS for 22 years (dx 1998)
                    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                    Comment


                      #11
                      Yeah maybe they did a exam the first time and the time after. The first time she noticed something with my leg and that's where I was having weakness at the time. The second it was normal. But I was waiting 2 months for appointment

                      Comment


                        #12
                        Originally posted by KoKo View Post

                        I wonder if a neurological exam (since it's been a couple of years) would help with some of your concerns.
                        A warm welcome to you, Siyman and sorry you are experiencing some troublesome and unexplained symptoms. When you had your neuro exams, were they with a general neurologist? You might at this stage, ask for a referral to an MS specialist, if you haven't already.

                        An MS neuro treats many more MS patients and have more experience, not to mention a wealth of knowledge, especially with MS, because it’s such a complex condition.

                        I wish you well on this ongoing journey and hope whatever is going on gets resolved quickly enough!
                        1st sx '89 Dx '99 w/RRMS - SP since 2010
                        Administrator Message Boards/Moderator

                        Comment


                          #13
                          Originally posted by Siyman View Post
                          I've had attacks that effect the same area but my last couple of been more random. This current one has caused stiffness as well feel like tin man lol. But seems to be getting worse everyday.
                          A neurologist, upon doing a neurological exam, could determine if the stiffness and 'tin man' feeling is due to muscle spasticity, which is caused by impaired nerve signals.

                          Take Care
                          PPMS for 22 years (dx 1998)
                          ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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