There is a rumor that after a certain age the Tysabri will not make a difference. This NP neurologist that I see(through telemedicine), said she doesn’t want to take the risk(for herself) of keeping me on Tysabri because I am likely secondary progressive.
I was diagnosed secondary progressive 11 years ago when I was put on Tysabri. The infusions stopped the aggressive progression and helped me get stronger again. This has remained stable except when she tried to stretch out the infusions six weeks. I lost a lot of function then and demanded I get back to the 28 day schedule.
The question is, what can I do to make sure my health care is my choice? Patients used to have rights.If she refuses to continue the Tysabri next time I see her what can I do?
in a big city I would go to another neurologist but I live in a place where there is only one neurology clinic. Can a neurologist prescribe Tysabri over state lines?
I was diagnosed secondary progressive 11 years ago when I was put on Tysabri. The infusions stopped the aggressive progression and helped me get stronger again. This has remained stable except when she tried to stretch out the infusions six weeks. I lost a lot of function then and demanded I get back to the 28 day schedule.
The question is, what can I do to make sure my health care is my choice? Patients used to have rights.If she refuses to continue the Tysabri next time I see her what can I do?
in a big city I would go to another neurologist but I live in a place where there is only one neurology clinic. Can a neurologist prescribe Tysabri over state lines?
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