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Almost 5 years of 8 week infusions

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    Almost 5 years of 8 week infusions

    Recently I had infusion #134 . I started Tysabri Oct 2006 so, I've been on this wonderful med for 13 1/2 years. My jcv has been between .20 and .27 which is indeterminate on one scale and low positive on another.

    I am a grateful Ty user and very thankful to G-d..

    Linda
    Linda

    #2
    Glad you are doing well with your treatment Linda.

    I'm curious, why G-d? Are you referring to God?

    Cheers....
    The future depends on what you do today.- Gandhi

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      #3
      Wow! That is such wonderful news, Linda! You are certainly the poster child for 8 wk infusions.
      Hope you can continue for many more years!
      1st sx '89 Dx '99 w/RRMS - SP since 2010
      Administrator Message Boards/Moderator

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        #4
        Woohoo! So glad you are still doing well on Tysabri extended dosing. When I started Tysabri, you were my inspiration and still are! I always love to see your check-ins.

        Congrats! Wishing you continued success.
        Kathy
        DX 01/06, currently on Tysabri

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          #5
          Linda, what a success story! I'm so glad you are doing so well.
          God Bless Us All

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            #6
            Originally posted by Boudreaux View Post
            Glad you are doing well with your treatment Linda.

            I'm curious, why G-d? Are you referring to God?

            Cheers....
            Jewish people, out of respect, do not write G-d complete .

            Thank you all for your kind words
            Linda
            Linda

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              #7
              Originally posted by lindaincolorado View Post
              Jewish people, out of respect, do not write G-d complete .

              Thank you all for your kind words
              Linda
              I did not know that. Thank you for responding.
              The future depends on what you do today.- Gandhi

              Comment


                #8
                Originally posted by Boudreaux View Post
                I did not know that. Thank you for responding.
                Oh Boudreaux I should've also said...what will probably be discarded, thrown away should not be G-d according to what I was taught.
                Linda

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                  #9
                  The future depends on what you do today.- Gandhi

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                    #10
                    lindaincolorado I’m on 6 wk infusion schedule and its nice now to learn that they’re willing to push it to 8 weeks. My JCV load is high and has been from the beginning (about a 1.5 years now) but presumably the extended schedule dosing helps one’s odds against PML. Fingers crossed. Glad you continue to do well on it!

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