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    Low WBC and lymphocytes

    My neuro wants me to go in and talk about treatment options because my WBC and lymphocytes are so low. My question is what treatment could I select that would allow my numbers to recover? I started with Avonex, then Rebif, and currently on Tecfidera. I have read many of the posts on this board and can't find the answer. I probably am asking the wrong question. Any help to figure this out is welcome and appreciated!

    #2
    I started on Copaxone and was on it for 6+ years before trying Tecfidera. After about 20 months or so on Tecfidera my white blood cell and lymphocyte counts were very low and trending lower. As I am JCV+, my neuro had me go back to Copaxone (actually generic Glatopa this time) and my lab work quickly all returned to normal. At least now they have the higher dosage Glatopa so I only have to inject 3 days/weeek!

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      #3
      Treatments

      My MS presented in April 2006. Out of the the blue.....😶

      Went back to college at night. Came home from work feeling bad.

      Had 2 finals that night to get my degree. By the time I got home I was
      running a fever of 102* and my head felt like I wanted to tear out my
      brain. Went to the emergency room. NOBODY knew what was wrong.

      5-months in & out of the E.R. being misdiagnosed......wtf?!

      Keep sending me home. Diagnosis was Viral Meningitis. Nope!

      5 lumbar punctures. Numerous CAT scans & MRI's.

      Finally found a GREAT Neurologist. Brought all scans & paperwork.

      After reviewing everything he Immediately scheduled me to start
      6-7 months of Chemotherapy. Only way to slow down progression.

      Also started once per week at home injections of Avonex.....😨

      After about 1-1/2 years kinda stalled. Not getting worse but not
      getting "better".

      Started Tysabri infusions. Stayed on Corticosteroids infusions too.

      THEN...... blood work showed I am JCV positive. Dammit!

      STOPPED all treatment. Limphocites crashed. ~0.6

      Off all treatment! occasionally Corticosteroid infusion.

      About 11 months with no treatments but keeping up on blood work.

      My Neurologist, as well as a Hematologist decided this is the
      "New Normal". As of today my Lymphocytes still ~0.7.

      Started on Tecfidara. This went well. For a while. Then Limphocites
      crashed again. Off all treatment for almost a year. Felt OK.

      Then started Aubagio. Once a day pill. Still on it. Working fine.

      Blood work and MRI scans show NO new activity......😎

      NO side effects. So.....this is my new normal.

      Comment


        #4
        Originally posted by Ryder View Post
        Then started Aubagio. Once a day pill. Still on it. Working fine.

        Blood work and MRI scans show NO new activity......😎

        NO side effects. So.....this is my new normal.
        Hello Ryder ~

        Well you certainly have been on a bumpy ride!

        Fingers crossed for you, that you have continued success with Aubagio.

        Hope to see more of your posts. Keep us informed with how you are doing.

        Take Care
        PPMS for 22 years (dx 1998)
        ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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