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    Crazy Itching

    Greetings, Any advise would be appreciated.

    I have been on Tecfidera for a couple years now with only occasional flushing if I'm off my schedule by a couple hours or more i.e. take a pill @ 7am and take a pill @ 6pm...but I've had no flushing in weeks...however......

    2 weeks ago I started to itch. Top of my butt/lower back, top of my elbows, behind my knees and my "saddlebags" on my thighs. I've tried 3x different types of moisturizing lotion, Benadryl, Off brand Benadryl and Calamine lotion with no relief. There is no rash or redness until I start scratching then of course I get raised bumps and heat. I wake myself up scratching and bloody

    Is this my MS, the Tecfidera or something else? Is a Dr going to be able to diagnose anything without blaming the MS..is my neurologist going to be able to give any relief without going through my trail and error lotion adventure.

    Anyone have anything similar? ANYTHING would be appreciated!!

    Thanks, Greg.
    Greg -
    Dx 4/07

    #2
    Itching

    I have only been on tecfidera for 2.5 weeks and I do itch as well. Nothing as bad as you wrote tho it's very minor on my scalp, back and face mostly I get a bit more acne acting up however which may be contributing to some itching I think, all tho very minor I do itch very little not very bothersome dad it is for you. Sorry I can't really help besides letting you know I itch too but not that bad.

    Comment


      #3
      Hi Greg and welcome to MSW!

      I get it. I was diagnosed with MS in 2004. Before my diagnosis, I think "crazy itching" was probably one of my first symptoms (but who in the heck would think itching = Multiple Sclerosis?). I think the stock in Gold Bond reached new heights and there were probably Gold Bond shortages in CT! As with many symptoms, the crazy itching spells would come and go, and it wasn't earth-shattering enough to see a doctor.

      I now know that itching can have a neurological basis. For me, there was no rash, no insect bites, and no obvious food allergies. Yup, it was an MS thing! I just didn't know it back then (and thankfully, it is not constant!). Please talk to your doctor. Itching is a maddening symptom, and there are medications that can help.
      Tawanda
      ___________________________________________
      Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

      Comment


        #4
        Thanks for the reply Ant!!

        **Update - Neuro says to stop Tecfidera immediately...via phone of course...and to call back in a month with a status update. Okie dokie! Will update if the itching stops.
        Greg -
        Dx 4/07

        Comment


          #5
          Unfortunately crazy itching, I think, is a symptom of MS.
          Thereís some talk about it in the ďsymptoms and treatmentsĒ foram on here.
          I get it too. Hands , feet and even one time an ear. It comes and goes. Mostly for me it starts around bed time and can persist through the night. Sometimes itís very intense and sometimes itís not. For me itís only a few times a year for about the last 12 Years.
          It was one agains't 2.5million toughest one we ever fought.

          Comment


            #6
            Correction

            Correction Been using tecfidera for 2.5 months not weeks.

            Comment


              #7
              Originally posted by Tawanda View Post
              I now know that itching can have a neurological basis. For me, there was no rash, no insect bites, and no obvious food allergies. Yup, it was an MS thing! I just didn't know it back then (and thankfully, it is not constant!). Please talk to your doctor. Itching is a maddening symptom, and there are medications that can help.
              I'm also convinced the 'crazy itching' is neurological, but I wonder if it's not just the neurons having a bad day (or getting old)...
              1st sx 11/26/09; Copaxone from 12/1/11 to 7/13/18
              NOT ALL SX ARE MS!

              Comment


                #8
                I had "crazy itching" on my scalp awhile back. Neither my PCP or my MS Specialist believed it was likely that it was caused by MS, but I'm not convinced. It might have been.

                I did finally go away. After 6 weeks, maybe?

                Here's a link to my past thread about it:
                https://www.msworld.org/forum/showth...highlight=itch
                ~ Faith
                MSWorld Volunteer -- Moderator since JUN2012
                (now a Mimibug)

                Symptoms began in JAN02
                - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                .

                - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                Comment


                  #9
                  Crazy itching

                  I have "crazy itching" on my scalp and ears😡
                  my MS Specialist believes it is not caused by MS, but I think it is

                  Comment


                    #10
                    Originally posted by brave View Post
                    I have "crazy itching" on my scalp and ears😡
                    my MS Specialist believes it is not caused by MS, but I think it is
                    Neurologists will often use the word "pruritus" instead of "crazy itching". It's lumped in with MS sensory symptoms.
                    Tawanda
                    ___________________________________________
                    Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

                    Comment


                      #11
                      I am one big crazy itch. Always blaming it on allergies and trying to control my environment. That helps, too, but I discovered gabapentin stops it. That was a real revelation. That tells me that MS is contributing to it.

                      Comment


                        #12
                        itching

                        I have had itching problems for a few years. Sometimes its so bad,it feels like thousands of ants crawling over me. scratching makes it worse. I believe its nerve related. My neurologist says its not MS related. I argued with him and said that many people on this website have the same problem. The MS society.com has a write up about itching being an MS symptom. Doctors dont know every thing. I itch on different spots like where the head meets the neck(its bad today),on my coccyx, elbows(weird). Lotions dont help, but i bought some myrrh oil and that seems to help.

                        Comment


                          #13
                          Hi,
                          How are you doing?
                          Glad your doc said to stop med.
                          While itching is a part of ms symptoms what you described does sound more like a reaction.
                          'I get raised bumps and heat' If this happens its generally not just nerve related.
                          Hope you are improved.
                          Caroline

                          Comment


                            #14
                            crazy itching too

                            I am currently not on any treatment for my MS. I have been diagnosed for 11 years now. did treatments in the past. That being said, i have bouts of total body 'itching', which ferl like little pin pricks but itchy if that makes sense. I have it everywhere, and it places aa person shouldnt itch. From head to toe. My neurologist says its not a symptom of MS, but researh tells me it is. I feel its a neurological problem. It drives me nuts. Its 1am and i am up with severe itching. I have tried many moisturuzers too. Nothing helps! A hot shower helps until i dry off.
                            Your not alone.

                            Comment


                              #15
                              Couponlady -- this quote was helpful to me.
                              If I ever experience "crazy itching again, I'll know what to call it.
                              Originally posted by Tawanda View Post
                              Neurologists will often use the word "pruritus" instead of "crazy itching". It's lumped in with MS sensory symptoms.
                              ~ Faith
                              MSWorld Volunteer -- Moderator since JUN2012
                              (now a Mimibug)

                              Symptoms began in JAN02
                              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                              .

                              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                              Comment

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