Marco, I have a question

[REG53]

Hello Marco,

When you stop taking Tec. did you stop cold turkey? I called my dr. office Tuesday but have not heard back so I called again today but I have to leave messages. He didn't tell me to stop or stay on it until I started something new and after I heard the word progression I didn't think to ask him. My refill is due and I didn't won't to pay $300.00 if it's not working.

How are you doing on Rituximab?

I also left a message about getting on this but he may want to wait for my jcv index result to maybe put me back on Ty.

Thank you Marco.

[Marco]

Hello Marco,

When you stop taking Tec. did you stop cold turkey? I called my dr. office Tuesday but have not heard back so I called again today but I have to leave messages. He didn't tell me to stop or stay on it until I started something new and after I heard the word progression I didn't think to ask him. My refill is due and I didn't won't to pay $300.00 if it's not working.

How are you doing on Rituximab?

I also left a message about getting on this but he may want to wait for my jcv index result to maybe put me back on Ty.

Thank you Marco.

I stopped cold turkey each time. When I got shingles I was told to immediately stop taking Tecfidera. Same when terminating it the other two times --- no taper, immediately stop.


Rituximab seems to be helping more in some areas than others. First off, it's over 110 heat index here so I feel like garbage, but my cog fog has definitely lessened. I received less benefit physically, but mentally there is definitely more signs of life. That's really great because I had no noticeable symptom relief from other DMTs. It was odd not taking a shot or pill at first, but now I am use to living life without a daily/weekly MS chore to do.

I did my annual MRIs and there was no new lesion activity. No relapses, but still some disability progression. I'm actually looking forward to my next infusion in September. I guess that's a pretty good endorsement for Rituximab.

[lindaincolorado]

Happy for you Marco I almost switched to Retuximab, instead went to every 56 days on Ty

REG53, good luck with whichever you choose! As always, I wish you my best-you, too, Marco

[REG53]

Marco- I can't image 110 degrees, I hope you get some relief soon and began to feel better. I'm glad you are feeling better mentally.

I never heard back from my neuro office which is not like them at all.

Linda- Thank you so much.

[Marco]

Yes, it gets hot in the summer, but in January I will be wearing shorts!

We have a rough 100 days or so, but that's the high price of fame and fortune since all of us live such glamorous lives.


I hope things get sorted out for you!