WALKING AND TECFIDERA

[MSer]

It seems whenever you start one of the new meds the side effects become the new normal I'm also taking Ampyra, my walking is much worse without it, I hate this crap!

I am so sorry to read this. I started taking Tec a week ago.. I only had one episode of flushing.. nothing with the stomach yet. But when I woke up this morning I just felt "weaker" all over. I want to attribute that to the heat spell we are experiencing and not Tech. Please keep writing on the board to let us know how you are doing. I wonder what the Neurologists are saying about the weakness and balance issues?

[finee9]

I've had over 60 Tysabri infusions and am considering Tecfidera because of PML concerns.The posts on this thread really worry me.I really like Tysabri.I'm just going to follow what my Neuro suggests.

I had about 5 years of Tysabri myself but I'm extremely JC +. I started Tecfedera 30 days ago and my walking and balance have declined too. It seems whenever you start one of the new meds the side effects become the new normal I'm also taking Ampyra, my walking is much worse without it, I hate this crap!

[SpeckledBrain]

I also noticed my balance seeming worse when I upped to 240. I already use bilateral support, now that doesn't even seem enough at times. But it does subside after a couple of hours so I'm thinking it's just the initial shock the med does to my system.

[cwasnea]

RE: WALKING AND TECFIDERA

As with any drug, it, too, went through years of testing to finally get FDA-approval. I'm not necessarily going to jump to the conclusion that the walking problems are surely caused by Tecfidera, as it was not a reported or known side-effect (as of yet, and that could change) during clinical trials. I think the Internet can bring people with similar concerns together and can make it feel like its a bigger issue than it really is. Or, I'm totally wrong and we are seeing new side effects and the drug gets pulled in six months..who knows. I'll keep those of you following this thread posted on my progress. So far, no (other) side effects noted at all from taking Tecfidera.

[ms man]

I've had over 60 Tysabri infusions and am considering Tecfidera because of PML concerns.The posts on this thread really worry me.I really like Tysabri.I'm just going to follow what my Neuro suggests.

[mellow]

Have you guys checked on maybe adding Ampyra? It helps with walking.

[Teddy123]

Why are these side effects not known? They had trials right? What if I made a bad descion taking this?

[cwasnea]

RE: WALKING AND TECFIDERA

That is very interesting- I just took my first 240mg dose of Tecfidera at 8:00 this morning, after completing the seven days of titration at 120mg.

I noted his past week my walking and balance has been way off, and today I am also having issues. I actually broke down three days ago and bought a cane.

Please keep us posted and I will do the same- this imight really be an issue. I will also try to get a hold of my neuro and do some further research. Good luck.

[Teddy123]

When I was on the 120 mg dose, my walk, stiffness and balance was so much better. But 1 week after my 240 mg my walk got really bad. I am only taking 240 mg 1 time a day until my stomach gets used to it. I think my walk is a little better once and awhile but this is just weird. Kind of scared to start the other 240mg.

Did they do trials on people? Did any of them have this side effect? Were their stomach issues as bad as some people's now?

Guess I should have waited to start this medicine till I saw how others did on it. My doctor was really excited about this med but now I'm kind of like why?

Since some people are not taking the recommended dose is it still working?

[Dreams008]

My walking ability has really decreased since starting Tecfidera. My legs are so weak and toes are dragging. I have been on Tecfidera for about 3 months now and with each day my walking is worse, yet my MRIs are unchanged. Anyone else experiencing walking problems since starting Tecfidera?