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  • Jennaly16
    replied
    Good afternoon!

    I am still on Mayzent and still doing well. It's the best i have felt and even have forgotten i have MS Occasionally i get a shooting nerve pain (more recent) but i have a lot going on with planning a wedding and potty training a toddler. At first i was getting some headaches toward end of day however that has subsided. Other than that, my fatigue has dramatically improved, i am able to have a cocktail and not fall over (on tysabri i could not drink as it dehydrated me severely) and it only takes a second of my day to take my medicine.

    I had a scan completed in December with no new lesions and i have been on this since July 3rd. I will be having another MRI on brain and spine in April just to ensure. Overall, i feel really good on it! No complaints as of yet.

    Leave a comment:


  • Redd26
    replied
    Can you provide an update?

    Hello jennaly16
    can you please provide any updates if your still on this medicine and how your doing??

    i start next month.

    best,
    paulette


    QUOTE=Jennaly16;1521526]I am on 2 mg! Still feeling great! Had headaches as a side effect but they have gone away. Best i've felt in the past year.

    With Tysabri i felt very dehydrated. I couldn't have any alcohol because i would fall and feel hungover (even after one drink). With Mayzent i feel like i'm able to go back to being a younger adult living life. Big fan so far![/QUOTE]

    Leave a comment:


  • Leenyi
    replied
    Wow Jenely that's great.
    My neuro had talked about switching me to mazent but I was waiting to hear how people do on it. Glad to hear that it's working for you. I hope you continue to see improvement.

    Leave a comment:


  • Jennaly16
    replied
    I am on 2 mg! Still feeling great! Had headaches as a side effect but they have gone away. Best i've felt in the past year.

    With Tysabri i felt very dehydrated. I couldn't have any alcohol because i would fall and feel hungover (even after one drink). With Mayzent i feel like i'm able to go back to being a younger adult living life. Big fan so far!

    Leave a comment:


  • Lynn1962
    replied
    mayzent

    If interested i can keep you posted however no major side effects as of yet and i'm on day 8![/QUOTE]

    Yes please keep us posted. What milligram do you take? 1 or 2?
    Hope you have great results!

    Leave a comment:


  • Jennaly16
    replied
    Good afternoon!

    I just stumbled across this thread. I just started taking Mayzent last week. So far, i think i'm doing ok. I've had some headaches and a lot of fatigue by the end of the day. However, i've been struggling with fatigue anyway.

    I was on Tysabri and couldn't handle the infusions anymore. My veins are difficult to find and then it takes multiple pokes to get the needle in and stay. After a year, i had enough.

    If interested i can keep you posted however no major side effects as of yet and i'm on day 8!

    Leave a comment:


  • tigers7493
    replied
    I would really read the side effects before you would consider it. I personally won't take it because of the side effects.

    Leave a comment:


  • Seasha
    replied
    Hi carolinenj - It hasn't been brought up much here on the message boards, but there is some discussion in this thread - https://www.msworld.org/forum/showth...yzent-tablets)

    Are you thinking of starting it?

    Leave a comment:


  • carolynj
    started a topic Mayzent

    Mayzent

    I just read about Mayzent - oral med in my new “Motivator” magazine. Newly approved by FDA. Siponimod. Anyone know anything?
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