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    #16
    Limppy again

    Hi i just started my year 2 1'st dose ( 5 days ) and i am doing good so far . No bad stuff I can feel. My last MRI showed stable , yea,, I am 64 now and my symptoms are more profound my right leg drags and has foot drop, my fatigue levels are not so great,, BUT I stay very active in spite of this >>
    I look forward to my 3 year period after this with no drugs except my maintance baclofen .gabopentin ,metaxalone ... I'll eep ya posted

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      #17
      Originally posted by limppy View Post
      Hi i just started my year 2 1'st dose ( 5 days ) and i am doing good so far . No bad stuff I can feel. My last MRI showed stable

      Glad to hear that, limppy! Thanks for the update.


      Originally posted by limppy View Post
      I am 64 now and my symptoms are more profound my right leg drags and has foot drop, my fatigue levels are not so great,, BUT I stay very active in spite of this

      Staying as active as possible, as our current abilities will allow, is important and beneficial. Good for you!


      Originally posted by limppy View Post
      I look forward to my 3 year period after this with no drugs except my maintance baclofen .gabopentin ,metaxalone ... I'll keep ya posted

      So, after your 2 week treatment of the second year, you're all done - is that correct?

      If that's the case - yay for you, limppy!
      PPMS for 22 years (dx 1998)
      ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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        #18
        I feel like I am in that RRMS to SPMS group and took my first dose of Mavenclad in Jan '20 and my second in Feb '20. I really was worried I would have some side effects because I felt this was a pretty powerful drug but really didn't experience any at all. Two months after treatment my absolute lymphocytes were 0.9 and a few months after that they were already back at 0.99 so idk if this did much?? I haven't had another MRI and not sure when I will but haven't noticed any improvement in symptoms at all.

        I was actually pretty scared taking an immune system depleter right before COVID hit - and thought I was DOOMED when my husband tested positive! I thought there was NO WAY I wasn't gonna end up with the virus. To our shock and surprise - I never got it!! I'm beginning to wonder if my immune system is just too strong!!

        But, yes, I'm 49 and am probably secondary progressive at this point. I use a scooter most of the time or a walker (which moves much slower). I'm just hoping Mavenclad stops me from getting any worse!!

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          #19
          Hi wanted to let ya know I finished my 2 nd year 2,nd dose of Mavenclad so now I am good for 3 years. No real big effects from it I think I do feel alittle more sensitive to my other meds , ( my eyes itched) still on my Gabopentin and Baclofin ..

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            #20
            Originally posted by limppy View Post
            Hi wanted to let ya know I finished my 2 nd year 2,nd dose of Mavenclad so now I am good for 3 years. No real big effects from it I think I do feel alittle more sensitive to my other meds , ( my eyes itched) still on my Gabopentin and Baclofin ..
            Terrific! Good for you, limppy!
            PPMS for 22 years (dx 1998)
            ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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