I think, technically, I can credit Lemtrada for being in remission from MS for the foreseeable future.
I just had my latest consult with my neuro, and he told me that at this point in my treatment, they do not envision administering any drugs, old or new, to me, as I appear to be stable and my MS appears to be inactive. He basically said, "Just call us if anything pops up, and in December at your next check up we'll re-evaluate the need for you to be on an anti-viral; if your lab works keeps looking good." In other words, "Go forth and prosper."
This after diagnosis in 2000, years of treatment at different times with Avonex, Tysabri, and Gilenya, and two vicious relapses with heartbreaking symptoms. Since my last relapse involving wall surfing, speech disturbances, loss of employment from two career-level jobs, I have rebounded to a somewhat lower level of pre-Dx mental acuity and physical ability. You still would never know I have MS from looking at me, although if you had seen me during my 2015 relapse, you would have sworn I was a drunk.
I got MS and all I have to show for it are these lousy Swiss-cheese-brain MRIs! (T-shirt humor there, in case you didn't get it.) So what is the point of this post? I don't know.... I'm not gloating, I assure you. I am just grateful to still be standing, and I wanted to let everyone know that Lemtrada helped me tremendously. I hope it helps you too. I know there is no one drug for all the various MS manifestations out there, but I'm sure thankful I received treatment with this one. May God bless you all.
I just had my latest consult with my neuro, and he told me that at this point in my treatment, they do not envision administering any drugs, old or new, to me, as I appear to be stable and my MS appears to be inactive. He basically said, "Just call us if anything pops up, and in December at your next check up we'll re-evaluate the need for you to be on an anti-viral; if your lab works keeps looking good." In other words, "Go forth and prosper."
This after diagnosis in 2000, years of treatment at different times with Avonex, Tysabri, and Gilenya, and two vicious relapses with heartbreaking symptoms. Since my last relapse involving wall surfing, speech disturbances, loss of employment from two career-level jobs, I have rebounded to a somewhat lower level of pre-Dx mental acuity and physical ability. You still would never know I have MS from looking at me, although if you had seen me during my 2015 relapse, you would have sworn I was a drunk.
I got MS and all I have to show for it are these lousy Swiss-cheese-brain MRIs! (T-shirt humor there, in case you didn't get it.) So what is the point of this post? I don't know.... I'm not gloating, I assure you. I am just grateful to still be standing, and I wanted to let everyone know that Lemtrada helped me tremendously. I hope it helps you too. I know there is no one drug for all the various MS manifestations out there, but I'm sure thankful I received treatment with this one. May God bless you all.
Comment