Gilenya every other day
i was switched to gilenya every other day a few years ago. it dropped my active lymphocyte count to <200 two labs in a row one one pill/day
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Half dose Gilenya?
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I have been on a half dose for a year
How are you going ? Are you taking the half dose ?
I have been on a half dose for about a year now. I actually take a tablet on Mondays, Wednesdays, Fridays and Sundays so I suppose I am on about a 60% dose. I take it like this so it is easier to remember.
I went to the reduced dose as my lymphocyte count was too low. It has come back to an acceptable level now since reducing the dose.
I have just had an MRI which has identified a new lesion although it is not producing any symptoms for me. But this may mean that my neurologist will review my medication when I next meet with her in November.
But I have tolerated the Gilenya well and haven't had any side effects except some Psoriasis when I was on the full dose.
Hope you are doing well !
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Yesterday I did my 1st dose appointment...today i feel awful, much like I did the day after the last time.
I am to take it everyday for the 1st week and then every other day. How did you remember to take it every other day? Normally I set a weekly alarm but I can't set one every other day...
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Yes 1/2 Dose Gilenya
Originally posted by KevsLuv View PostIs anyone taking gilenya every other day? I was taken off of G last year due to super low white counts. My neuro is now thinking we should go back on it but take 1 every other day after the first week.
Thoughts?
So
1. yes one tablet every 2 days seemed ok
2. watch biotin and thyroid function tests (they may not mix).
I will transfer to Tecfidera after 6 weeks when everything has settled back down I guess.
Regards
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I did that and then went to every third day- white count came up so I could stay on it.
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Half dose Gilenya?
Is anyone taking gilenya every other day? I was taken off of G last year due to super low white counts. My neuro is now thinking we should go back on it but take 1 every other day after the first week.
Thoughts?Tags: None
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