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CHANGES AT MSWORLD - MSWORLD'S CLOSURE

We began with a mission and purpose to help others living with MS.

We were excited to get going!

And hit a few bumps along the way…

However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!

July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.

We need a financial miracle to keep going forward.

We thank all for your support.

MSWorld's website will close on October 16, 2024.

“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”

God Bless you, Kathleen

Kathleen Wilson
Founding President
❤️

we leave knowing that
we did our best and
stayed true to our mission and purpose.


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Does anyone still use Betaseron?

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    Does anyone still use Betaseron?

    Hi,

    Does anyone still use Betaseron? I started it after failing Copaxone (anaphylactic reaction) several years ago. I see people talking about a lot of the other meds but not Betaseron, so I am curious.

    #2
    I was on Betaseron for 11 years and aside from the red spots on the injection sites and the flu-like symptoms that I would get ONLY if I didn't premedicate with some aspirin, I had no problems whatsoever. When oral MS meds became available I switched over to Tecfidera and at the 2 year mark had a full-body extreme itch and hives. Went off Tecfidera and switched to Plegridy. And again, at the 2 year mark, had the exact same reaction! Went off Plegridy and have been completely off drugs for 2 years now and am going to go back on....and am thinking that Betaseron is the way to go for me. I don't like autojection and would prefer pills, but the plain truth is I felt better with Betaseron than I did on either of the two oral meds I tried.
    Wendy
    "There are signs everywhere...."
    "Life is wasted if it's not lived as an adventure."

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      #3
      Originally posted by mnkitten View Post
      Hi,

      Does anyone still use Betaseron? I started it after failing Copaxone (anaphylactic reaction) several years ago. I see people talking about a lot of the other meds but not Betaseron, so I am curious.
      I was just the opposite. i started on Betaseron in 2003 and used it for 5 years with multiple, frequent and serious flares. After changing doctors, I switched to Copaxone, which was much more effective for me. I was on Copaxone for about 12 years years; went off last year after progressing to SMPS.
      ~ Faith
      MSWorld Volunteer -- Moderator since JUN2012
      (now a Mimibug)

      Symptoms began in JAN02
      - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
      - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
      .

      - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
      - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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