It’s been years since I’ve posted here because luckily I was very stable. A year ago I was talking to my MS specialist and he said he’s pretty confident that due to my history and mild level of illness after over 25 years, he thought I would stay the same. Last year was rough on me medically with non-MS issues. At the end of August my legs turned into noodles/jello (which is common and temporary). I also had severe fatigue and slept all the time for a month and a half. My medical issues have been resolved but my normal legs have yet to return. I had my annual doc appt and he ran 8 different blood tests to rule out muscular problems. All are negative. I am now SPMS, my doc even said ‘I was hoping that you weren’t going to progress’.
I have been waiting for them to improve and regain some energy but I realize that it isn’t going to happen. This is now my new normal. I am pissed because I have a lot to do, we are selling our house and buying a smaller one. That’s so much work! I’m upset that I am not up to the task and will now have to ask for help, which I am not used to doing. I don’t allow myself to have pity parties so I’m not whining, I am just ticked off that I’m getting worse after doing all the right things to avoid progression.
I have been waiting for them to improve and regain some energy but I realize that it isn’t going to happen. This is now my new normal. I am pissed because I have a lot to do, we are selling our house and buying a smaller one. That’s so much work! I’m upset that I am not up to the task and will now have to ask for help, which I am not used to doing. I don’t allow myself to have pity parties so I’m not whining, I am just ticked off that I’m getting worse after doing all the right things to avoid progression.
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