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    #31
    Lol

    Originally posted by Mamabug View Post
    Lol; no problem. When we combine your talent for confusing people with a talent I have for being easily confused, we make an interesting pair.

    Mamabug, sounds like we should stay far away from eachother.

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      #32
      I read somewhere (maybe here) that the diagnosis of SPMS can only be certain with an autopsy. But, shortly after my diagnosis my neurologist said I had transitioned to SPMS. Tysabri has stopped the progression so there is no way to tell. Thank goodness we have treatments like Tysabri that can be used when we are no longer RRMS!

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        #33
        Hmmm

        Originally posted by palmtree View Post
        I read somewhere (maybe here) that the diagnosis of SPMS can only be certain with an autopsy. But, shortly after my diagnosis my neurologist said I had transitioned to SPMS. Tysabri has stopped the progression so there is no way to tell. Thank goodness we have treatments like Tysabri that can be used when we are no longer RRMS!
        So I'll ask my doctor if he'll order an autopsy. Lol. This disease is like a rollercoaster. So many twists and turns. Makes you feel sick. So confusing.

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          #34
          Originally posted by kittysmith View Post
          So I'll ask my doctor if he'll order an autopsy. Lol. This disease is like a rollercoaster. So many twists and turns. Makes you feel sick. So confusing.
          LOL! I guess we will always be left guessing. The labels donít really mean that much anyway. If we have RRMS how do we know that we are really remitting?

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            #35
            Ha!

            Originally posted by palmtree View Post
            LOL! I guess we will always be left guessing. The labels donít really mean that much anyway. If we have RRMS how do we know that we are really remitting?
            I admit, I'm not sure if I remit.

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              #36
              Originally posted by palmtree View Post
              If we have RRMS how do we know that we are really remitting?
              Originally posted by kittysmith View Post
              I admit, I'm not sure if I remit.
              I've been thinking about this for a few days.

              I guess my perspective is that, if we are no longer in a relapse, we are in remission. So, we're usually in remission. In RRMS, we are either relapsing, or we are remitting

              We still have some residual damage from our previous flares, but if new symptoms are not occurring, and if old symptoms are not worsening, we are in remission.
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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