(I'm not really a bimbo. It just sounded good
)
Hey everyone! I’m new here. I’ve been in MS limbo for 2 years now, 1 non-active lesion in my brain, no spinal lesions. I’ve had three brain MRIs and one full spinal MRI, no spinal tap yet. I go in for an EMG in a couple of days. If I do have MS, I would be in the middle of my 3rd (known) relapse.
It started in late 2018 with some really bad vertigo, which stayed for multiple months and would come and go – I would feel drunk and like everything around me was moving slightly. I was referred to a neuro in January 2019 and given my first MRI which showed the lesion, but bloodwork was perfect and no other hallmark MS symptoms at that time so my neuro just chalked it up to a viral infection I had the year prior, put me on meclizine and sent me on my way. April 2019 I was diagnosed with Celiac disease, but other than that I had no medical issues until late 2019/early 2020 (except a few times where I had something that I could only describe as an MS hug). I got strep throat in December, and in January 2020, after getting strep, I started feeling numb spots in random places on my body – like a patch of skin on my leg would feel numb/painful to touch, and couple days would pass, and then the spot would “move” to a different limb. This happened for weeks. I also had major “skin crawling” feelings all over my body, pins and needles, itching, you name it. it was pretty much constant for months and pretty maddening.
Now, fast forward to November 2020 and I’ve had an entirely new set of symptoms creep up. I had a bit of vertigo but not nearly as bad as I had it before, and I still have the itching/skin crawling/pins and needles. I’ve had a mild/moderate headache every single day since probably the beginning of November (before, I would get the occasional tension headache but nothing frequently), I get random stabbing pains to the point I cry out because it’s so painful. My body will twitch especially when I lie still (sometimes it feels like a buzzing sensation, sometimes my foot will jerk toward me), and I’ve gotten frequent painful muscle cramps recently. I’ve been told by my long-term partner that I twitch/jerk in my sleep much more frequently than I ever have before. Been getting night sweats almost every night. To top it off, I have been incredibly exhausted despite sleeping at least 8 hours every night and eating relatively healthy and exercising.
Has anyone had similar symptoms? I’m not good at waiting and I just want to know if I have it or not!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **

Hey everyone! I’m new here. I’ve been in MS limbo for 2 years now, 1 non-active lesion in my brain, no spinal lesions. I’ve had three brain MRIs and one full spinal MRI, no spinal tap yet. I go in for an EMG in a couple of days. If I do have MS, I would be in the middle of my 3rd (known) relapse.
It started in late 2018 with some really bad vertigo, which stayed for multiple months and would come and go – I would feel drunk and like everything around me was moving slightly. I was referred to a neuro in January 2019 and given my first MRI which showed the lesion, but bloodwork was perfect and no other hallmark MS symptoms at that time so my neuro just chalked it up to a viral infection I had the year prior, put me on meclizine and sent me on my way. April 2019 I was diagnosed with Celiac disease, but other than that I had no medical issues until late 2019/early 2020 (except a few times where I had something that I could only describe as an MS hug). I got strep throat in December, and in January 2020, after getting strep, I started feeling numb spots in random places on my body – like a patch of skin on my leg would feel numb/painful to touch, and couple days would pass, and then the spot would “move” to a different limb. This happened for weeks. I also had major “skin crawling” feelings all over my body, pins and needles, itching, you name it. it was pretty much constant for months and pretty maddening.
Now, fast forward to November 2020 and I’ve had an entirely new set of symptoms creep up. I had a bit of vertigo but not nearly as bad as I had it before, and I still have the itching/skin crawling/pins and needles. I’ve had a mild/moderate headache every single day since probably the beginning of November (before, I would get the occasional tension headache but nothing frequently), I get random stabbing pains to the point I cry out because it’s so painful. My body will twitch especially when I lie still (sometimes it feels like a buzzing sensation, sometimes my foot will jerk toward me), and I’ve gotten frequent painful muscle cramps recently. I’ve been told by my long-term partner that I twitch/jerk in my sleep much more frequently than I ever have before. Been getting night sweats almost every night. To top it off, I have been incredibly exhausted despite sleeping at least 8 hours every night and eating relatively healthy and exercising.
Has anyone had similar symptoms? I’m not good at waiting and I just want to know if I have it or not!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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