Hello everyone,
I wanted to document my story as I think it would be good for me to get it all out and be good for anyone else that is in limbo.
My symptoms began in Feb 2018 when I started having left leg numbness and brain zaps on the left side of my head. I immediately thought I had a blood clot because taking combination birth control can cause blood clots. I went to the ER and after an x ray and ct of my spine, some labs, and a CT and MRI with and without contrast of my brain. I was diagnosed with having a pituitary tumor.
The radiologist in his report said that the pituitary tumor does not explain the symptoms I am having because the size is only 3mm and would not cause compression of any other nerves. I decided not to get the opinion of a neurologist or an endocrinologist because by the time I got my MRI results back (end of feb, beginning of march) my symptoms were gone. I decided to change my birth control to the mini pill and maybe that would resolve my symptoms.
Ever since then I would get occasional leg numbness and brain zaps every few months for a few days. Recently I decided to start recording my symptoms.
14th April 2019 - 20th April 2019 : Brain zaps triggered when I turn my head to the left, pain in right ear.
September or October (i forgot to record it) : Pain when bending head forward only happened once or twice.
25th November 2019 - 4th of Jan 2020 : Burning upper arm, pins and and needles in fingers, spine pain, muscle twitching, pain behind eye, burning scalp, ear pain, brain zaps.
This recent flare up of symptoms triggered me to finally go to a neurologist and endocrinologist because the symptoms were never that bad before. Neurologist listened to my symptoms, ordered a brain MRI and an MRI of my pituitary and suggested that my symptoms might be from the pituitary tumor but it was hard for him to say because he could not look at my actual MRI just the report of it. The endocrinologist was pretty adamant that my symptoms in no way would be caused by a 3mm pituitary tumor and did some tests and found out that it is an active prolactinoma.
Symptoms of a prolactinoma are no menses, low sex drive, breast discharge, and infertility. I have none of those symptoms so he suggested that I could either take medicine to get rid of the tumor all together or just wait and do a retest of my prolactin in 6 months. I chose to wait.
It was nice to get the reassurance from him that I knew in feb of 2018 that my symptoms were not connected to my 3mm tumor but who knows it might have grown since almost 2 years ago. My MRI is on the 23rd of Jan but in the mean time i am dealing with residual symptoms. like the sympoms arent as bad as they were during the late november early jan time frame but i am still dealing with scalp pain and itchiness, burning legs and arms, and throbbing behind my eyes. Are there any home remedies to help soothe me while I wait?
I wanted to document my story as I think it would be good for me to get it all out and be good for anyone else that is in limbo.
My symptoms began in Feb 2018 when I started having left leg numbness and brain zaps on the left side of my head. I immediately thought I had a blood clot because taking combination birth control can cause blood clots. I went to the ER and after an x ray and ct of my spine, some labs, and a CT and MRI with and without contrast of my brain. I was diagnosed with having a pituitary tumor.
The radiologist in his report said that the pituitary tumor does not explain the symptoms I am having because the size is only 3mm and would not cause compression of any other nerves. I decided not to get the opinion of a neurologist or an endocrinologist because by the time I got my MRI results back (end of feb, beginning of march) my symptoms were gone. I decided to change my birth control to the mini pill and maybe that would resolve my symptoms.
Ever since then I would get occasional leg numbness and brain zaps every few months for a few days. Recently I decided to start recording my symptoms.
14th April 2019 - 20th April 2019 : Brain zaps triggered when I turn my head to the left, pain in right ear.
September or October (i forgot to record it) : Pain when bending head forward only happened once or twice.
25th November 2019 - 4th of Jan 2020 : Burning upper arm, pins and and needles in fingers, spine pain, muscle twitching, pain behind eye, burning scalp, ear pain, brain zaps.
This recent flare up of symptoms triggered me to finally go to a neurologist and endocrinologist because the symptoms were never that bad before. Neurologist listened to my symptoms, ordered a brain MRI and an MRI of my pituitary and suggested that my symptoms might be from the pituitary tumor but it was hard for him to say because he could not look at my actual MRI just the report of it. The endocrinologist was pretty adamant that my symptoms in no way would be caused by a 3mm pituitary tumor and did some tests and found out that it is an active prolactinoma.
Symptoms of a prolactinoma are no menses, low sex drive, breast discharge, and infertility. I have none of those symptoms so he suggested that I could either take medicine to get rid of the tumor all together or just wait and do a retest of my prolactin in 6 months. I chose to wait.
It was nice to get the reassurance from him that I knew in feb of 2018 that my symptoms were not connected to my 3mm tumor but who knows it might have grown since almost 2 years ago. My MRI is on the 23rd of Jan but in the mean time i am dealing with residual symptoms. like the sympoms arent as bad as they were during the late november early jan time frame but i am still dealing with scalp pain and itchiness, burning legs and arms, and throbbing behind my eyes. Are there any home remedies to help soothe me while I wait?
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