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Chronic micro vascular ischemia disease at 39?

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    Chronic micro vascular ischemia disease at 39?

    So Iíve been looking into my symptoms for over 2 years. Seen two neurologists, had tons of scans and tests. All they can give me is chronic microvascular ischemic disease?? Thatís common in much older people. I feel like they donít want to investigate any further so they are going with this. Am I crazy to feel like this or I just need to accept my brain is way older than it should be an I should expect to lose my mind ? Anyone have any experience with this or given this diagnosis??

    #2
    Welcome. Sorry you are experiencing health issues. What type of symptoms do you have? What did your MRIs show?

    Is there a reason you feel the diagnosis doesn't fit, other than age? Do you have risk factors(high BP, cholesterol,etc...) for it and/or any stroke history? How did the neuros suggest you treat it? Any follow-up tests?

    Were the neuros general neurologists? If so, you may want to consider an MS specialist.
    Kathy
    DX 01/06, currently on Tysabri

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      #3
      Originally posted by pennstater View Post
      Welcome. Sorry you are experiencing health issues. What type of symptoms do you have? What did your MRIs show?

      Is there a reason you feel the diagnosis doesn't fit, other than age? Do you have risk factors(high BP, cholesterol,etc...) for it and/or any stroke history? How did the neuros suggest you treat it? Any follow-up tests?

      Were the neuros general neurologists? If so, you may want to consider an MS specialist.
      i have had tingling in hands a feet for years, bouts of losing my vision, blurry vision. I have issues with the left side of my body. Had MRIs that showed white spots on my brain but not spine. I got the it doesnít totally fit MS but it kinda does. Did that evoke test and she couldnít figure why Iím so much weaker on my left.
      I have NO risk factors for theChronic microvascular disease. No strokes. Doc said basically all I could do was take good care of myself. Thatís itís. Super frustrating. I saw two different neurologists, my options arenít huge related to insurance

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        #4
        Originally posted by vortexmama79 View Post
        I got the it doesnít totally fit MS but it kinda does. Did that evoke test and she couldnít figure why Iím so much weaker on my left.
        Hi vortexmama

        Sorry to learn that you are dealing with uncertainty, doubt, and frustration regarding your diagnosis.

        I'm wondering if you had a lumbar puncture for spinal fluid analysis, and your eyes examined by a neuro ophthalmologist?

        These tests can also provide important info.

        Take Care
        PPMS for 22 years (dx 1998)
        ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

        Comment


          #5
          Originally posted by KoKo View Post
          Hi vortexmama

          Sorry to learn that you are dealing with uncertainty, doubt, and frustration regarding your diagnosis.

          I'm wondering if you had a lumbar puncture for spinal fluid analysis, and your eyes examined by a neuro ophthalmologist?

          These tests can also provide important info.

          Take Care
          They didnít really push for the lumbar puncture and neither did I. I never thought about a neuro ophthalmologist. I donít want to have MS but I feel like they just gave me that diagnosis to appease me cause I didnít ďfit the moldĒ exactly to anything

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            #6
            Originally posted by vortexmama79 View Post
            I donít want to have MS but I feel like they just gave me that diagnosis to appease me cause I didnít ďfit the moldĒ exactly to anything
            I totally understand what you're saying, vortexmama.

            You want to feel confident in your diagnosis, and also feel that you're getting proper treatment.

            You probably will have the nagging doubts until you see a neuro that specializes in MS, and he can explain in detail why you have CMVI, and don't have MS. I know that I would need to know for sure, or the uncertainty would really bug me.

            Take Care
            PPMS for 22 years (dx 1998)
            ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

            Comment


              #7
              Originally posted by KoKo View Post
              I totally understand what you're saying, vortexmama.

              You want to feel confident in your diagnosis, and also feel that you're getting proper treatment.

              You probably will have the nagging doubts until you see a neuro that specializes in MS, and he can explain in detail why you have CMVI, and don't have MS. I know that I would need to know for sure, or the uncertainty would really bug me.

              Take Care
              Thank you! I so appreciate someone understanding how I feel! You are right I need to find someone to say for sure why itís CMVI

              Comment


                #8
                Originally posted by vortexmama79 View Post
                Thank you! I so appreciate someone understanding how I feel! You are right I need to find someone to say for sure why itís CMVI
                vortexmama

                Talk to your primary doctor about your concerns, in the same way that you have shared here with us.

                In a perfect world, (and with perfect health insurance coverage), doc would understand what bothers you about the dx, and would do whatever he needs to do to help alleviate it.

                Take Care
                PPMS for 22 years (dx 1998)
                ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

                Comment

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