On Friday, I have my first neuro appointment for MS in years. I now have four lesions, they follow the time and space criteria. Two are in my brain, two are in my optic nerve. At first I had about two to three flares a year. Now it's about six. I have ON, fatigue, heat related issues, migranes, muscle spasms, Lhermittes, joint pain, mood issues, cognitive issues that make it difficult to speak, and the awesome foot drop.
I had Probable MS diagnosis from MS specialist for years. ( I guess this is CIS now)
My question is this, can I ask after all this time and flares and lesions, to at least be treated- I've never been and I am at the point where I believe without treatment the foot drop will put me in a wheel chair.
I've been diagnosed with fibro, and the treatment for the disease never worked. I am tired of being sick-- and tired of waiting to ride out the next flare. This last one was impossible to hide at work. -- I can usually say it's a cold, or a bug, or not enough sleep. Not being able to walk properly is pretty hard to make up an excuse for.
Has anyone ever been successful at asking to be treated without diagnosis?-- or with CIS or probable MS? I've had non neuro's give me steroids -- ( THEY work) but never the neuro.
Thanks!
I had Probable MS diagnosis from MS specialist for years. ( I guess this is CIS now)
My question is this, can I ask after all this time and flares and lesions, to at least be treated- I've never been and I am at the point where I believe without treatment the foot drop will put me in a wheel chair.
I've been diagnosed with fibro, and the treatment for the disease never worked. I am tired of being sick-- and tired of waiting to ride out the next flare. This last one was impossible to hide at work. -- I can usually say it's a cold, or a bug, or not enough sleep. Not being able to walk properly is pretty hard to make up an excuse for.
Has anyone ever been successful at asking to be treated without diagnosis?-- or with CIS or probable MS? I've had non neuro's give me steroids -- ( THEY work) but never the neuro.
Thanks!
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