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    In limbo

    Hello all,
    I first started having issues in April of this year, I would start to get headaches about lunchtime everyday, and they would progressively get worse throughout the day and into the evening. I called my neurologist (I have had migraines for years, and Botox and some supplements worked, using other meds occasionally). Nothing that had previously worked was working for these headaches.

    My neurologist gave me other meds and said we'll do Botox as soon as possible (you can only do it every 3 months and I had just had it before these headaches started). I continued to push myself to go to work for about a week and then I couldn't take it anymore. My primary care Dr got me in when I called, for a next day appointment and he put me on temporary disability.

    It has been almost 3 months now, my neurologist has ruled out a Chiairi Malformation, but other than that he doesn't seem interested in finding a diagnosis, he just says try this ok, try that. My Primary Dr ordered the brain MRI to rule out Chiairi and when I brought up MS, he (neurologist) said your MRI shows no indication of MS, and MS is not something you want.

    After that I asked my Primary Dr to put in a referral for a second opinion, and that has taken time, finally approved. Of course MS is not something I want, does anybody want this horrible horrible disease/disorder whatever? No, that's ridiculous.

    ** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **

    #2
    Hi Bever,
    My name is JerryD and I think that your post suggests several possible diagnoses. It's great that you are searching for a diagnosis from several doctors. I just want to know your vitamin D level! If your doctor's are worth your money that number should be available from your CBC's ! Please tell me that you have done several COMPLETE Blood Tests! Good luck !!

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      #3
      Originally posted by JerryD View Post
      Hi Bever,
      My name is JerryD and I think that your post suggests several possible diagnoses. It's great that you are searching for a diagnosis from several doctors. I just want to know your vitamin D level! If your doctor's are worth your money that number should be available from your CBC's ! Please tell me that you have done several COMPLETE Blood Tests! Good luck !!
      Thanks JerryD,
      I know my Primary Dr has done lots of blood work, CBC many times over the years and some recently, as for Vitamin D I don't know, but I'll look into it. My neurologist never runs blood work (except for the one time I asked if maybe my iron level was low), but I'm looking to replace him.

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        #4
        Hi Bever and welcome!

        MS is a complicated disease and it is sometimes difficult to diagnosis.

        For understanding MS, here are some links to help you - http://www.nationalmssociety.org/What-is-MS This is a basic explanation from the National MS Society.

        For understanding the process of diagnosing MS - http://www.nationalmssociety.org/For.../Diagnosing-MS

        There are many other conditions that mimic MS and these need to be ruled out first http://www.nationalmssociety.org/Sym...ns-to-Rule-Out

        You are right that no one wants this disease! Here's hoping that you don't have it and you can eventually get to the bottom of what ails you.
        Take care!
        1st sx '89 Dx '99 w/RRMS - SP since 2010
        Administrator Message Boards/Moderator

        Comment


          #5
          Originally posted by Seasha View Post
          Hi Bever and welcome!

          MS is a complicated disease and it is sometimes difficult to diagnosis.

          For understanding MS, here are some links to help you - http://www.nationalmssociety.org/What-is-MS This is a basic explanation from the National MS Society.

          For understanding the process of diagnosing MS - http://www.nationalmssociety.org/For.../Diagnosing-MS

          There are many other conditions that mimic MS and these need to be ruled out first http://www.nationalmssociety.org/Sym...ns-to-Rule-Out

          You are right that no one wants this disease! Here's hoping that you don't have it and you can eventually get to the bottom of what ails you.
          Take care!
          Thank you Maya,
          I have already been to the national ms society website, it's very helpful. I hadn't noticed the "Other Conditions To Rule Out" page. I wrote all of those down and am marking off any that I know don't fit. This is very helpful, thank you so much.

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