Yes I use fun sarcastically, because how I'm feeling is not fun!
A little background. I was diagnosed with a syrinx at c4-c6 (2007), very small and asymptomatic at the time. Had an MRI without contrast and 6.5mm slices with skips on Symphony machine.
Went to ER last night because I just can't stand the feeling that my legs are half asleep the past week. Have been awaiting a Neuro appt on March 3rd and from what I've read about the syrinx if it does happen to enlarge enough to cause compression of the cord, the nerve damage could become permanent. So naturally I wanted answers NOW.
Well ER did full blood cbc, thyroid panel, and two other tests. One of which I know was Calcium level and nurse said it tested 15 different things and another one she couldn't tell me what it was for. Going to hospital today to get those records to add to mine and take to my pcm appt on monday to get the ball rolling on an MRI referral BEFORE my neuro appt. No one seems to get the fact that I NEED an MRI to check on the syrinx before it does permanent damage. But that's Tricare for ya! My only issue with the syrinx causing my problems theory is that for it to cause this many symptoms (yes I'm not listing ALL of them, thank me later) it would be causing the supposed "cape-like" pain which I do NOT have.
The ER doctor did a neurological exam and tested all my reflexes, poked me repeatedly with a sharp stick (literally) then tickled the crap out of me with the cotton swap side. Showed positive romberg and positive bambinski signs. She didn't test hoffman. Had me walk on my toes and heels with my eyes closed, and apparently because I only walked like a newborn fawn (nearly falling repeatedly) she said I walked pretty good lol.
Told me it was probable I had an underlying neurological condition such as MS among other things but would require further testing (that they don't do there in ER) and was quite insistent that I MAKE SURE I get into neurology and put in another referral. Sorry it's long, understand if you got tired half way through and skipped (I do too). Thanks for letting me rant, even if slightly so.
A little background. I was diagnosed with a syrinx at c4-c6 (2007), very small and asymptomatic at the time. Had an MRI without contrast and 6.5mm slices with skips on Symphony machine.
Went to ER last night because I just can't stand the feeling that my legs are half asleep the past week. Have been awaiting a Neuro appt on March 3rd and from what I've read about the syrinx if it does happen to enlarge enough to cause compression of the cord, the nerve damage could become permanent. So naturally I wanted answers NOW.
Well ER did full blood cbc, thyroid panel, and two other tests. One of which I know was Calcium level and nurse said it tested 15 different things and another one she couldn't tell me what it was for. Going to hospital today to get those records to add to mine and take to my pcm appt on monday to get the ball rolling on an MRI referral BEFORE my neuro appt. No one seems to get the fact that I NEED an MRI to check on the syrinx before it does permanent damage. But that's Tricare for ya! My only issue with the syrinx causing my problems theory is that for it to cause this many symptoms (yes I'm not listing ALL of them, thank me later) it would be causing the supposed "cape-like" pain which I do NOT have.
The ER doctor did a neurological exam and tested all my reflexes, poked me repeatedly with a sharp stick (literally) then tickled the crap out of me with the cotton swap side. Showed positive romberg and positive bambinski signs. She didn't test hoffman. Had me walk on my toes and heels with my eyes closed, and apparently because I only walked like a newborn fawn (nearly falling repeatedly) she said I walked pretty good lol.
Told me it was probable I had an underlying neurological condition such as MS among other things but would require further testing (that they don't do there in ER) and was quite insistent that I MAKE SURE I get into neurology and put in another referral. Sorry it's long, understand if you got tired half way through and skipped (I do too). Thanks for letting me rant, even if slightly so.
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